• Onset stages and FA

    Posted by Community Member on May 18, 2026 at 10:09 am

    Did you know the onset of Friedreich’s Ataxia (FA) can vary by age?

    The different onset stages are listed below:

    • Early onset: Symptoms begin before age 7

    • Typical onset: Symptoms begin between the ages of 8 and 14

    • Intermediate onset: Symptoms begin between the ages of 15 and 24

    Where does your or your loved ones’ onset stage lie, and what significant changes have you seen since the initial diagnosis?

    For example, I was 21 years old (intermediate onset), and now I am 35 years old and have seen significant changes by now, using 2 mobility aids and experiencing major symptoms such as fatigue and slurred speech.

    Community Member replied 1 month, 2 weeks ago 2 Members · 5 Replies
  • 5 Replies
  • Community Member

    Member
    May 18, 2026 at 12:20 pm

    I fall into the Intermediate onset category. I started to show symptoms at 19 but was diagnosed at 16 due to my older sisters diagnosis. I am 23 now and use a walker when going to places with a lot of walking. My speech is also starting to slur.

    • Community Member

      Member
      May 20, 2026 at 9:37 am

      Oh wow! I started noticing symptoms at 17, but was diagnosed at 21. It’s interesting how everyone’s diagnosis story is different.

      • Community Member

        Member
        May 20, 2026 at 1:00 pm

        Do you have cardiomyopathy?

      • Community Member

        Member
        May 20, 2026 at 2:31 pm

        Thankfully, I do not. Do you?

      • Community Member

        Member
        May 21, 2026 at 11:37 am

        I do not.

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