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  • NORD Webinar – The Rare Sibling Experience

    Posted by christina-cordaro on March 5, 2021 at 10:05 am

    The impact of a rare disease goes beyond the patient and into their family dynamic. Siblings of rare disease patients often face personal challenges inside and outside of the home. Guidance and nurturing can empower unaffected siblings to be supportive members of the family while being their self.

    Join NORD on March 25th to hear from child life specialist, Kate McGowen and psychologist Dr. David Rintell, who will discuss common barriers and best practices for fostering healthy sibling relationships. Rare sibling Hannah Raskin-Gross will share her experience growing up with a brother who has a rare disease and how it has shaped her commitment to advocacy.

    For more information click below:
    https://event.webcasts.com/starthere.jsp?ei=1437277&tp_key=880d330215&sti=eblast1

    christina-cordaro replied 3 years ago 1 Member · 0 Replies
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