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How do you explain FA to others?
Have you struggled to explain Friedreich’s ataxia to others? It can at times feel as complicated as living with the disease.
Since the disease is so complex, I like to give an “elevator speech” to quickly explain FA and what it entails to a stranger, or to someone I am meeting for the first time, and to hopefully paint a picture for them.
I say, “I have a neuromuscular disease, known as Friedreich’s ataxia, that affects my muscles, which means I lose the ability to walk and have trouble with my speech. There is no cure, but there is a treatment”.
What is your quick version of the disease?
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