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    EveryLife Foundation – Survey

    Posted by christina-cordaro on July 9, 2020 at 9:54 am

    The EveryLife Foundation is sponsoring the National Burden of Rare Disease survey and has asked for input from the FA community to see the economic costs of rare disease. Results of this study will be used in public health policy discussions.

    Please click below for survey: burdenstudy.org

    christina-cordaro replied 3 years, 9 months ago 1 Member · 0 Replies
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