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Do you have a strong connection within the FA Community?
A community of people who understand what you are going through is so important when navigating living with a rare disease. For me, I have a good friend, Brittany, who also lives with FA. Even though she lives in Missouri, and I live in Pennsylvania, we are very close, and we call each other best friends.
We met in 2013 at a Friedreich’s Ataxia Symposium and have been close ever since. We talk almost every day, and we lean on each other whether we need guidance and support, whether it’s FA-related or not.
Do you have someone or a group of people like this within the FA Community? How has it shaped you into who you are as a person today?
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