Friedreich’s Ataxia News Forums Forums Parents and Caregivers Clinical Trial Participation

  • Christina Cordaro

    Member
    July 7, 2021 at 3:23 pm

    @katie-griffith my brother wno js 20 is currently participating in the Natural History Study at the Children’s Hospital of Philadelphia (CHOP).

    He enjoys visiting every 6 months because he likes comparing and trys to beat his score on the neurological tests! He likes to compete with himself! Lol

    • Katie Griffith

      Member
      July 7, 2021 at 5:53 pm

      That’s great, Christina! My son is part of that study as well at UF. A competitive spirit helps, I’m sure 🙂

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