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When I was first diagnosed, I spent the next 3-4 months drinking heavy and feeling sorry for myself. Not to sure of what happened but I had the inclination to attend a symposium and sign up for a clinical trial. To be honest, I think it was fear. The fear of the unknown and the fear of “no cure.” I had never been to a doctor before and been told “there’s nothing we can do.” 3-4 months is not a long time and I understand that. For many of my friends, it took years and THAT’S OKAY.
What are some of the things that have discouraged or currently discourage you from getting involved with the community?
To me it’s not knowing where to start as far as making friends. For me I started my FA journey when I was a freshman in high school. I knew alot of people but didn’t have close friends. Especially those in the FA community. To me that’s a big hesitation I have to not join the FA community.
I would love to join! I’ve been an observer for too long now I want to join the fun. Lol.
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