{"id":2162,"date":"2024-04-24T16:46:59","date_gmt":"2024-04-24T21:46:59","guid":{"rendered":"https:\/\/bnfaimprd.wpenginepowered.com\/?page_id=2162"},"modified":"2024-08-29T16:03:27","modified_gmt":"2024-08-29T21:03:27","slug":"matts-rare-journey","status":"publish","type":"page","link":"https:\/\/friedreichsataxianews.com\/experience\/matts-rare-journey\/","title":{"rendered":"Matt Lafleur&#8217;s Rare Journey with Friedreich&#8217;s Ataxia"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; disabled_on=&#8221;on|on|on&#8221; admin_label=&#8221;Side Navigation&#8221; module_class=&#8221;immersive-nav&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#535c79&#8243; position_origin_f=&#8221;center_center&#8221; vertical_offset=&#8221;0px&#8221; horizontal_offset=&#8221;0px&#8221; width=&#8221;330px&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_padding=&#8221;15px|0px|0px|0px|false|true&#8221; custom_css_after=&#8221;||    width: 28px;||    height: 26px;||    position: absolute;||    background-color: #535c79;||   content: url(%22data:image\/svg+xml,%3C%3Fxml version=&#8217;1.0&#8242; encoding=&#8217;utf-8&#8217;%3F%3E %3Csvg width=&#8217;20px&#8217; height=&#8217;20px&#8217; viewBox=&#8217;0 0 20 20&#8242; xmlns=&#8217;http:\/\/www.w3.org\/2000\/svg&#8217; fill=&#8217;none&#8217;%3E%3Cpath fill=&#8217;%23FFFFFF&#8217; fill-rule=&#8217;evenodd&#8217; d=&#8217;M19 4a1 1 0 01-1 1H2a1 1 0 010-2h16a1 1 0 011 1zm0 6a1 1 0 01-1 1H2a1 1 0 110-2h16a1 1 0 011 1zm-1 7a1 1 0 100-2H2a1 1 0 100 2h16z&#8217;\/%3E%3C\/svg%3E%22);||    top: 0;||    right: -35px;||    color: #FFFFFF !important;||    padding-top: 5px;||    padding-left: 8px;&#8221; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|0px|0px|15px|false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|true|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins|600|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>JUMP TO<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row module_id=&#8221;navigation-main-row&#8221; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins|||on|||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; text_font_size=&#8221;14px&#8221; custom_margin=&#8221;10px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul id=\"main-navigation-items\">\n<li><a class=\"jump-nav-links\" href=\"#jump-early-years\">Matt&#8217;s Early Years<\/a><\/li>\n<li><a href=\"#jump-the-diagnosis\">The Diagnosis<\/a><\/li>\n<li><a href=\"#jump-reaction-diagnosis\">Reaction to the Diagnosis<\/a><\/li>\n<li><a href=\"#jump-matt-father\">Video: A Father&#8217;s Perspective<\/a><\/li>\n<li><a href=\"#jump-facing-monster\">Facing the Monster<\/a><\/li>\n<li><a href=\"#jump-good-life\">Making it a Good Life<\/a><\/li>\n<li><a href=\"#jump-missing-piece\">Finding the Missing Piece<\/a><\/li>\n<li><a href=\"#jump-new-hope\">New Hope &#8211; Treating the Untreatable<\/a><\/li>\n<li><a href=\"#jump-leave-message\">Leave a Note for Matt<\/a><\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Section&#8221; module_id=&#8221;jump-start&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#192241&#8243; background_image=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/FAI-section1-bg.jpg&#8221; background_position=&#8221;top_center&#8221; custom_margin=&#8221;0px|0px|0px|0px|true|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|true|false&#8221; custom_css_main_element=&#8221;transform: scale(1.0);&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;Row&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; max_width=&#8221;500px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; 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_builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;none&#8221; position_origin_r=&#8221;bottom_left&#8221; width=&#8221;95%&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; module_id=&#8221;matt-main-img-col&#8221; admin_label=&#8221;Column&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/matt-full-fade1.png&#8221; alt=&#8221;Matt LaFleur&#8221; title_text=&#8221;Matt LaFleur&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; max_width_tablet=&#8221;&#8221; max_width_phone=&#8221;40%&#8221; max_width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; animation_style=&#8221;fade&#8221; animation_duration=&#8221;550ms&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; module_id=&#8221;hero-rightcol&#8221; admin_label=&#8221;Column&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Text&#8221; module_id=&#8221;hero-feature-line&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Outfit|700|||||||&#8221; text_text_color=&#8221;#a8e5ff&#8221; custom_margin=&#8221;5px||5px||true|false&#8221; custom_padding=&#8221;5px||5px||true|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong>A BIONEWS &amp; FRIEDREICH&#8217;S ATAXIA NEWS SPECIAL FEATURE<\/strong><\/p>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Rare Journey Title&#8221; module_id=&#8221;rare-journey-container&#8221; module_class=&#8221;rare-journey-title&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Bebas Neue||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; text_font_size=&#8221;120px&#8221; text_line_height=&#8221;0.8em&#8221; custom_margin=&#8221;15px||5px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"rare-j-heading\">THE RARE JOURNEY<\/div>\n<p>[\/et_pb_text][et_pb_text module_id=&#8221;byline-txt&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#ffffff&#8221; text_font_size=&#8221;15px&#8221; custom_margin=&#8221;8px||10px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span>By Bionews Staff with Matt Lafleur<\/span><\/p>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/matt-full-fade1.png&#8221; alt=&#8221;Matt LaFleur&#8221; title_text=&#8221;matt-full-fade1&#8243; disabled_on=&#8221;off|off|on&#8221; module_id=&#8221;mattsilo-mobile&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text module_id=&#8221;hero-intro-text&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Aleo||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; background_color=&#8221;#0d1636&#8243; custom_margin=&#8221;||||false|true&#8221; custom_padding=&#8221;30px|30px|30px|30px|true|true&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span data-metadata=\"&lt;!--(figmeta)eyJmaWxlS2V5IjoiOXU5SHZ5NVNCMldyeXRxcnVVdmpzcyIsInBhc3RlSUQiOjE5NTc5NDAxODgsImRhdGFUeXBlIjoic2NlbmUifQo=(\/figmeta)--&gt;\"><\/span>Diagnosed with Friedreich&#8217;s ataxia (FA) at 9 years old, Matt Lafleur&#8217;s childhood transformed into a battle against his own decline. He channeled his youthful energy into knowledge, finding his voice as an advocate and ambassador for the FA community. While the fight for a cure persists, Matt isn&#8217;t waiting \u2014 he&#8217;s living, a symbol of hope proving you can thrive, not just survive, with this relentless disease.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/04\/FAI-mouse-scroll.png&#8221; alt=&#8221;Scroll to Engage&#8221; title_text=&#8221;FAI-mouse-scroll&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;10%&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text module_class=&#8221;scroll-engage&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Outfit|700|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; text_font_size=&#8221;12px&#8221; text_orientation=&#8221;center&#8221; custom_margin=&#8221;0px||25px||false|false&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"engage-txt\">SCROLL TO ENGAGE<\/div>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span style=\"font-weight: 400;\">Matt\u2019s path from a normal kid to becoming an FA advocate was filled with letdowns, setbacks, and odds that seemed overwhelming. But his hardheaded spirit wouldn\u2019t allow him to give up, and his supportive community taught him how important it is to recognize little victories, especially when your future is uncertain.<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"rsrc-lp-ad-1\"><\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Section&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;Row&#8221; module_id=&#8221;country-section&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f2f2&#8243; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;100%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; custom_padding=&#8221;34px|||||&#8221; custom_css_main_element=&#8221;overflow:hidden;&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_code disabled_on=&#8221;off|off|off&#8221; module_class=&#8221;louisiana-map&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;|auto||auto|false|true&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"louisiana-map-container\"><!-- [et_pb_line_break_holder] --> <?xml version=\"1.0\" encoding=\"utf-8\"?><!-- [et_pb_line_break_holder] --><!-- Generator: Adobe Illustrator 28.4.1, SVG Export Plug-In . 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M992.7,829.6c0.1,0,0.3,0,0.6-0.1<!-- [et_pb_line_break_holder] -->\t\t\tc0-0.1,0-0.4-0.1-0.7c0-0.3-0.1-0.6-0.1-0.7C993.1,828.4,992.9,828.9,992.7,829.6z&#8221;\/><!-- [et_pb_line_break_holder] -->\t<\/g><!-- [et_pb_line_break_holder] --><\/g><!-- [et_pb_line_break_holder] --><\/svg><!-- [et_pb_line_break_holder] --><\/div>\n<p>[\/et_pb_code][et_pb_text module_id=&#8221;jump-early-years&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_line_height=&#8221;1.9em&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_padding=&#8221;30px|30px|30px|30px|true|true&#8221; custom_padding_tablet=&#8221;30px|30px|30px|30px|true|true&#8221; custom_padding_phone=&#8221;|20px||20px|true|true&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; custom_css_main_element=&#8221;z-index:999999&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\">MATT&#8217;S EARLY YEARS<\/h2>\n<p><span style=\"font-weight: 400;\">The year was 1985, and the place was Opelousas, Louisiana. The November air hung heavy with humidity as Matt was born in the heart of Cajun country. Sports were a big deal in his family. His dad, a high school football and baseball star, and his mom, a head cheerleader and all-state softball player, practically lived for games. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Matt, their firstborn, seemed like a natural athlete. He started strong in elementary school soccer, a ball of energy, a pint-sized Messi in mud-caked cleats. <\/span><\/p>\n<p><span>Outside of sports,<\/span><span> their lives revolved around barbecues with extended family,<\/span><span> Saturday movie nights filled with popcorn,<\/span><span> and the thrill of summer trips to the nearest amusement park.<\/span><span> It was a typical American childhood of the &#8217;80s,<\/span><span> punctuated by cheers at the baseball and soccer fields.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">But things changed over time. Matt wasn&#8217;t improving as much as the other kids. His feet, once quick and light, became clumsy. The ball wouldn&#8217;t do what he wanted it to. His worried parents thought it was just a growth spurt, a temporary, awkward phase.<\/span><\/p>\n<div id=\"attachment_3333\" style=\"width: 748px;\" class=\"wp-caption alignnone\">\n<p><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-3333\" src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-little-league-baseball3.png\" width=\"738\" height=\"459\" alt=\"Matt posing for his Little League photo (circa 1993)\" class=\"wp-image-2959 size-full\" style=\"display: block; margin-left: auto; margin-right: auto;\" \/><\/p>\n<p id=\"caption-attachment-3333\" class=\"wp-caption-text\">Matt posing for his Little League photo (circa 1993)<\/p>\n<\/div>\n<p><span style=\"font-weight: 400;\">Then came a gymnastics class in third grade. The teacher, a woman with sharp eyes, spoke to Mrs. Lafleur privately. &#8220;Maybe it&#8217;s his feet,&#8221; she said with concern. &#8220;Flat feet can mess with a kid&#8217;s balance.&#8221; Everyone thought a podiatrist visit and some arch supports would fix it.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">But the podiatrist, who had seen many patients, saw something more. Matt&#8217;s walk wasn&#8217;t quite right. It was a small thing, something his parents didn&#8217;t notice anymore, just a way he moved.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The doctor&#8217;s words were a shock: &#8220;Shoe inserts won&#8217;t help this. We need a neurologist.&#8221; There wouldn&#8217;t be a quick fix. This changed everything. A doctor&#8217;s visit for flat feet became a scary mystery. Matt&#8217;s life, and his family&#8217;s lives, were about to take a different direction.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The Louisiana air felt even heavier, filled with unspoken worry. Their perfect athlete, their little Matt, might have a problem much bigger than being clumsy.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p class=\"story-continues\">STORY CONTINUES BELOW<\/p>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_code][et_pb_code admin_label=&#8221;Audio New 1&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; width=&#8221;600px&#8221; width_tablet=&#8221;500px&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|desktop&#8221; custom_margin=&#8221;|auto||auto|false|true&#8221; custom_padding=&#8221;||||false|true&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"matt-audio-widget\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-header\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-img\"><img decoding=\"async\" src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-lafleur-audio-bg1.jpg\" alt=\"Matt Lafleur\"\/><\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-txt\">HEAR FROM MATT: EARLY YEARS<\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-quote\">&#8220;I assumed that I had a childhood just like every other boy.&#8221;<\/div>\n<p><!-- [et_pb_line_break_holder] --> <iframe loading=\"lazy\" src=\"https:\/\/cdn.jwplayer.com\/players\/HVpq8Xfo-fJgmSfSB.html\" width=\"320\" height=\"40\" frameborder=\"0\" scrolling=\"auto\" title=\"Matt-Immersive-Early-Years\" allowfullscreen><\/iframe><!-- [et_pb_line_break_holder] --><\/div>\n<p><!-- [et_pb_line_break_holder] -->[\/et_pb_code][et_pb_code _builder_version=&#8221;4.27.0&#8243; 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_module_preset=&#8221;default&#8221; positioning=&#8221;none&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_code _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div style=\"position:relative;overflow:hidden;padding-bottom:75%\"><iframe loading=\"lazy\" src=\"https:\/\/cdn.jwplayer.com\/players\/5l2uIsce-j44eixnL.html\" width=\"100%\" height=\"100%\" frameborder=\"0\" scrolling=\"auto\" title=\"Matt Home Movies\" style=\"position:absolute;\" allowfullscreen><\/iframe><\/div>\n<p>[\/et_pb_code][\/et_pb_column][et_pb_column type=&#8221;2_5&#8243; admin_label=&#8221;Column&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;none&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Aleo||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; background_color=&#8221;#0d1636&#8243; custom_padding=&#8221;30px|30px|30px|30px|true|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\"><span style=\"color: #ffffff;\">1993: The LAST YEAR OF NORMAL for MATT AND THE LAFLEUR Family<\/span><\/h2>\n<p>Watch clips of Matt and his family enjoying life to the fullest. From birthday parties and backyard activities, to playing sports, the Lafleurs were just like every American family in 1993.<\/p>\n<p>The following year would bring news that would alter the course of their lives forever.[\/et_pb_text][et_pb_image src=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/05\/text-arrow-video.png&#8221; alt=&#8221;Watch video of home movies&#8221; title_text=&#8221;text-arrow-video&#8221; disabled_on=&#8221;on|on|off&#8221; admin_label=&#8221;Image&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; transform_rotate=&#8221;0deg|0deg|-8deg&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;bottom_left&#8221; vertical_offset=&#8221;0px&#8221; horizontal_offset=&#8221;0px&#8221; width_tablet=&#8221;100%&#8221; width_phone=&#8221;100%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_margin=&#8221;||||false|false&#8221; custom_css_main_element=&#8221;max-width: 200px !important;||height:auto;||bottom: -20px;||right: 270px;||left: initial;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Section&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row module_id=&#8221;jump-the-diagnosis&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#F3F2F2&#8243; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;100%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_line_height=&#8221;1.9em&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_padding=&#8221;30px|30px|30px|30px|true|true&#8221; custom_padding_tablet=&#8221;30px|30px|30px|30px|true|true&#8221; custom_padding_phone=&#8221;|20px||20px|true|true&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; custom_css_main_element=&#8221;z-index:999999&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\">THE DIAGNOSIS (AND IT&#8217;S NOT JUST MATT)<\/h2>\n<p><span style=\"font-weight: 400;\">The doctor visits became a relentless odyssey across Louisiana, spilling over into Mississippi and Texas. Each appointment felt like an inconvenience, a roller coaster of hope and disappointment for his parents. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Doctors examined Matt closely, using confusing medical terms to explain what they found. They all agreed the problem was in the nerves, probably something passed down in the family. <\/span><span style=\"font-size: 16px;\">This clue, they hoped, might lead to an answer.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Matt&#8217;s two younger sisters, who had been on the sidelines before, were now part of the story. One by one, 3-year-old Mckenzie and then 6-year-old Morgan were asked to do a simple test: stand on one leg. Mckenzie, naturally balanced, did it easily. But Morgan, worried and tense, struggled. The news that followed felt like a punch in the gut. Whatever was going on with Matt, Morgan likely had it too.<\/span><\/p>\n<blockquote>\n<p><span style=\"font-weight: 400;\">&#8220;The news that followed felt like a punch in the gut. Whatever was going on with Matt, Morgan likely had it too.&#8221;<\/span><\/p>\n<\/blockquote>\n<p><span style=\"font-weight: 400;\">Finding a diagnosis remained frustrating. Each visit felt like a depressing trip with no clear answer. Matt, a kid who loved competition, was stuck in a race he couldn&#8217;t seem to win. The search for answers became a routine <span>\u2014 <\/span>sterile waiting rooms and unanswered questions.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">A year into their journey, a neurologist in New Orleans, a city known for both its charm and medical expertise, offered a new diagnostic approach. Matt remembers some things <span>\u2014 <\/span>sticky things attached to his legs and Morgan&#8217;s, a weird tingling feeling. These, he learned later, were measuring the messages traveling through his nerves, messages that gave the doctor important clues.<\/span><\/p>\n<p>The answer, when it finally came, was a long, hard-to-say word: Friedreich&#8217;s ataxia.<\/p>\n<p><span style=\"font-weight: 400;\">Matt probably didn&#8217;t understand it much at the time. But for his parents, it must have been devastating. Two of their three precious children were facing a mysterious, never-ending illness. Their picture-perfect future had vanished, replaced by a scary unknown.<\/span><\/p>\n<p class=\"story-continues\">STORY CONTINUES BELOW<\/p>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;600px&#8221; width_tablet=&#8221;500px&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"matt-audio-widget\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-header\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-img\"><img decoding=\"async\" src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-lafleur-audio-bg1.jpg\" alt=\"Matt Lafleur\"\/><\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-txt\">HEAR FROM MATT: THE DIAGNOSIS<\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-quote\">&#8220;I wanted to give up. I wanted to go back to my normal life, my normal school friends and normal activities.&#8221;<\/div>\n<p><!-- [et_pb_line_break_holder] --> <iframe loading=\"lazy\" src=\"https:\/\/cdn.jwplayer.com\/players\/pHx9YhIU-fJgmSfSB.html\" width=\"320\" height=\"40\" frameborder=\"0\" scrolling=\"auto\" title=\"Matt-Immersive-The-Diagnosis-Audio\" allowfullscreen><\/iframe><!-- [et_pb_line_break_holder] --><\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"rsrc-lp-ad-2\"><\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Section&#8221; module_id=&#8221;jump-what-is-fa&#8221; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;3_5,2_5&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_5&#8243; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div style=\"position:relative;overflow:hidden;padding-bottom:56.25%\"><iframe loading=\"lazy\" src=\"https:\/\/cdn.jwplayer.com\/players\/cfeP36Oi-KFcXJfrl.html\" width=\"100%\" height=\"100%\" frameborder=\"0\" scrolling=\"auto\" title=\"Giovanni Manfredi, MD - What is FA\" style=\"position:absolute;\" allowfullscreen><\/iframe><\/div>\n<p>[\/et_pb_code][\/et_pb_column][et_pb_column type=&#8221;2_5&#8243; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Aleo||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; background_color=&#8221;#0d1636&#8243; custom_padding=&#8221;30px|30px|30px|30px|true|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\"><span style=\"color: #ffffff;\">WHAT IS FRIEDREICH&#8217;S ATAXIA?<\/span><\/h2>\n<p><span style=\"font-size: 16px;\"><span>When Matt\u2019s family heard these words uttered by a New Orleans neurologist in 1994,<\/span><span> they sounded foreign and confusing.<\/span><span> <\/span><\/span><\/p>\n<p>Friedreich\u2019s ataxia is a rare disease,<span> unfamiliar to most people.<\/span><span> To provide clarity,<\/span><span> we turned to <\/span><span>Giovanni Manfredi,<\/span><span> MD,<\/span><span> PhD,<\/span><span> a world-renowned expert in FA,<\/span><span> to offer more information about the condition and how it affects the body. Manfredi is currently professor of neuroscience at Weill Cornell Medical College in New York City.<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_font_size=&#8221;14px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\">STORY CONTINUES BELOW<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Section&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row module_id=&#8221;jump-reaction-diagnosis&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f2f2&#8243; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;100%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_line_height=&#8221;1.9em&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_padding=&#8221;30px|20px|30px|20px|true|true&#8221; custom_css_main_element=&#8221;z-index:999999&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\">REACTION TO THE DIAGNOSIS<\/h2>\n<p>Matt was done with doctor visits. They used to be rare events in his childhood, but now they were constant. All he wanted was a normal life, to go back to school and play sports again.<\/p>\n<p>The truth was harsh. Running, which used to be easy, was now difficult. Balancing, something he never thought about, was a challenge. Even walking in a straight line seemed hard. For a moment, he wondered if it was because of the strange stickers the doctor in New Orleans put on his legs. But that idea didn&#8217;t last long. This wasn&#8217;t temporary.<\/p>\n<p>Matt always loved sports, so his worsening balance and coordination seemed much more obvious now. He soon quit, which was upsetting. But things kept getting worse. His illness took away his abilities bit by bit. Each new symptom surprised him and left him feeling out of breath and confused.<\/p>\n<blockquote>\n<p>&#8220;It wasn&#8217;t about what his body was losing, but what was still there <span>\u2014<\/span> his spirit and his courage.&#8221;<\/p>\n<\/blockquote>\n<p>Matt used to be very social; some might even say he talked too much. Now, he didn&#8217;t talk to anyone very often. He couldn&#8217;t talk to his parents, friends, or even his sister, Morgan, who was going through this with him.<\/p>\n<p>He couldn&#8217;t find the words, and his feelings were all mixed up. Middle school was a blur of quiet hallways and a growing sense of despair.<\/p>\n<p>But even in the darkness, Matt found a little bit of hope. He was raised Catholic, and his childhood beliefs comforted him. His faith helped him during this difficult time. A specific Bible verse was a light in the darkness: &#8220;Don&#8217;t be impressed by his appearance. &#8230; God looks at the heart&#8221; (1 Samuel 16:7).<\/p>\n<p>It wasn&#8217;t about what his body was losing, but what was still there <span>\u2014 <\/span>his spirit and his courage. This small spark of hope would be what helped Matt get through the tough times ahead.<\/p>\n<p>&nbsp;<\/p>\n<p class=\"story-continues\">STORY CONTINUES BELOW<\/p>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;600px&#8221; width_tablet=&#8221;500px&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"matt-audio-widget\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-header\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-img\"><img decoding=\"async\" src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-lafleur-audio-bg1.jpg\" alt=\"Matt Lafleur\"\/><\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-txt\">HEAR FROM MATT: REACTION TO THE DIAGNOSIS<\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-quote\">&#8220;Man, why does this keep getting worse? &#8230; I felt like there wasn&#8217;t anyone I could turn to at that point.&#8221;<\/div>\n<p><!-- [et_pb_line_break_holder] --> <iframe loading=\"lazy\" src=\"https:\/\/cdn.jwplayer.com\/players\/G4oDH7pQ-fJgmSfSB.html\" width=\"320\" height=\"40\" frameborder=\"0\" scrolling=\"auto\" title=\"Matt-Immersive-Reaction-to-Diagnosis-Audio\" allowfullscreen><\/iframe><!-- [et_pb_line_break_holder] --><\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Matt Father Diagnosis&#8221; module_id=&#8221;jump-matt-father&#8221; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; background_enable_image=&#8221;off&#8221; min_height=&#8221;500px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;3_5,2_5&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_5&#8243; admin_label=&#8221;Column&#8221; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;none&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_code _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div style=\"left: 0; width: 100%; height: 0; position: relative; padding-bottom: 56.25%;\"><iframe src=\"https:\/\/cdn.jwplayer.com\/players\/hUtHc8JV-KFcXJfrl.html\" style=\"top: 0; left: 0; width: 100%; height: 100%; position: absolute; border: 0;\" allowfullscreen scrolling=\"no\" allow=\"encrypted-media;\"><\/iframe><\/div>\n<p><!-- [et_pb_line_break_holder] -->[\/et_pb_code][\/et_pb_column][et_pb_column type=&#8221;2_5&#8243; admin_label=&#8221;Column&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;none&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Aleo||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; background_color=&#8221;#0d1636&#8243; custom_padding=&#8221;50px|40px|50px|40px|true|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\"><span style=\"color: #ffffff;\">WATCH MATT&#8217;S FATHER TALK ABOUT THE DAY OF THE DIAGNOSIS<\/span><\/h2>\n<p><span>In this emotional video,<\/span><span> Freddie Lafleur,<\/span><span> father of Matt and Morgan,<\/span><span> describes the day their family received the life-altering diagnosis of Friedreich&#8217;s ataxia.<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Section&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row module_id=&#8221;jump-facing-monster&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f2f2&#8243; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;100%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_line_height=&#8221;1.9em&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_padding=&#8221;30px|20px|30px|20px|true|true&#8221; custom_css_main_element=&#8221;z-index:999999&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\">FACING THE MONSTER<\/h2>\n<p><span style=\"font-weight: 400;\">Matt couldn&#8217;t ignore the name &#8220;Friedreich&#8217;s ataxia&#8221; anymore. In his first year of high school, his balance and walking kept getting worse. He couldn&#8217;t pretend it wasn&#8217;t happening anymore. He went online to learn everything he could about this disease.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">He decided to put his clunky home computer to work, and he first typed in &#8220;Friedreich&#8217;s ataxia&#8221; around 1999.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Even though Matt had been diagnosed years before, he never really took ownership of his diagnosis. He didn&#8217;t want to live in fear of the unknown anymore. He held his breath and clicked &#8220;search.&#8221;<br \/><\/span><\/p>\n<p><span style=\"font-weight: 400;\">What he found was both good and bad news. He felt relieved to finally have a medical explanation for his clumsiness. It wasn&#8217;t his fault. These were the symptoms he&#8217;d been experiencing, and it explained why he&#8217;d felt unwell for years. But the more he read, the more scared he became.<\/span><\/p>\n<blockquote>\n<p><span style=\"font-weight: 400;\"><span>&#8220;It didn&#8217;t matter that his body was failing him, his spirit was still strong.&#8221;<\/span><\/span><\/p>\n<\/blockquote>\n<p><span style=\"font-weight: 400;\">The disease wouldn&#8217;t get better. It would spread to his arms, voice, and even his heart. He wouldn&#8217;t live a long life. <\/span><span style=\"font-weight: 400;\">Playing sports, something he still secretly hoped for, was definitely out of the question. Wheelchairs, not sports cleats, were what people with FA ended up using.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Then came the worst part: There was no cure. There wasn&#8217;t a medicine or surgery to fix the damage. The disease would just keep getting worse. It felt unfair. He wanted to fix it, but there was nothing he could do. He felt hopeless.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">He couldn&#8217;t talk to anyone about it. He withdrew even more, preferring to be alone. Loud music helped him block things out. He listened to songs about hope and teenage angst. Video games provided a temporary escape from reality.<\/span><\/p>\n<p><span style=\"font-weight: 400;\"><span>Since Matt didn&#8217;t talk about his diagnosis, he turned to writing bad teenage poetry to express his confusion, sadness, angst, and other bottled-up emotions.<\/span><\/span><\/p>\n<p><span style=\"font-weight: 400;\"><span>It didn&#8217;t matter that his body was failing him; his spirit was still strong.<\/span><\/span><\/p>\n<p><span style=\"font-weight: 400;\">High school was a challenge. Matt wanted to be independent, so he used the lockers to hold himself up as he walked through the hallways. <\/span><span style=\"font-weight: 400;\">Using his surroundings to get around, he felt almost normal.<\/span><span style=\"font-weight: 400;\"> <\/span><\/p>\n<p><span style=\"font-weight: 400;\">But things were getting harder. B<\/span><span style=\"font-weight: 400;\">y senior year, stairs were impossible, and he couldn&#8217;t walk without help anymore.<\/span><\/p>\n<p class=\"story-continues\">STORY CONTINUES BELOW<\/p>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;600px&#8221; width_tablet=&#8221;500px&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"matt-audio-widget\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-header\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-img\"><img decoding=\"async\" src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-lafleur-audio-bg1.jpg\" alt=\"Matt Lafleur\"\/><\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-txt\">HEAR FROM MATT: FACING THE MONSTER<\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-quote\">&#8220;My diagnosis became like a monster in the corner that I was afraid to look at.&#8221;<\/div>\n<p><!-- [et_pb_line_break_holder] --> <iframe loading=\"lazy\" src=\"https:\/\/cdn.jwplayer.com\/players\/Dvt5Jc8P-fJgmSfSB.html\" width=\"320\" height=\"40\" frameborder=\"0\" scrolling=\"auto\" title=\"Matt-Immersive-Facing-the-Monster-Audio\" allowfullscreen><\/iframe><!-- [et_pb_line_break_holder] --><\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; disabled_on=&#8221;off|off|off&#8221; admin_label=&#8221;Matt Teen Photos&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/05\/text-arrow-pics.png&#8221; alt=&#8221;Scroll to see pics&#8221; title_text=&#8221;text-arrow-pics&#8221; align=&#8221;center&#8221; disabled_on=&#8221;on|off|off&#8221; admin_label=&#8221;Image&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;matt-later-slideshow-row&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; min_height=&#8221;900px&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;Photo Slideshow Teen Years&#8221; module_id=&#8221;jump-gallery-later&#8221; module_class=&#8221;photo-show-teen-years&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;100%&#8221; width_last_edited=&#8221;off|phone&#8221; height=&#8221;800px&#8221; height_tablet=&#8221;1000px&#8221; height_phone=&#8221;900px&#8221; height_last_edited=&#8221;on|phone&#8221; custom_margin_tablet=&#8221;&#8221; custom_margin_phone=&#8221;||||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; admin_label=&#8221;Column&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/Matt-Photo-20.jpg&#8221; alt=&#8221;Matt with the LSU Counseling Grad School class of 2010. Lucky guy!&#8221; title_text=&#8221;Matt-Photo-20&#8243; align=&#8221;center&#8221; admin_label=&#8221;Image&#8221; module_class=&#8221;matt-photo-5&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_center&#8221; custom_css_main_element=&#8221;display:flex;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/Matt-Photo-18.jpg&#8221; alt=&#8221;Serving as President of the Catholic Student Center&#8221; title_text=&#8221;Matt-Photo-18&#8243; align=&#8221;center&#8221; admin_label=&#8221;Image&#8221; module_class=&#8221;matt-photo-5&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; transform_rotate=&#8221;0deg|0deg|3deg&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_center&#8221; custom_css_main_element=&#8221;z-index:2;||display:flex;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/Matt-Photo-17.jpg&#8221; alt=&#8221;Matt&#8217;s friends took him to the Grand Canyon&#8221; title_text=&#8221;Matt-Photo-17&#8243; align=&#8221;center&#8221; admin_label=&#8221;Image&#8221; module_class=&#8221;matt-photo-4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; transform_rotate=&#8221;0deg|0deg|357deg&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_center&#8221; custom_css_main_element=&#8221;z-index:3;||display:flex;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/Matt-Photo-16.jpg&#8221; alt=&#8221;Mission trip to Mexico with Dad&#8221; title_text=&#8221;Matt-Photo-16&#8243; align=&#8221;center&#8221; admin_label=&#8221;Image&#8221; module_class=&#8221;matt-photo-3&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; transform_rotate=&#8221;0deg|0deg|-3deg&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_center&#8221; custom_css_main_element=&#8221;z-index:4;||display:flex;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/Matt-Photo-15.jpg&#8221; alt=&#8221;Skydiving for the first time&#8221; title_text=&#8221;Matt-Photo-15&#8243; align=&#8221;center&#8221; admin_label=&#8221;Image&#8221; module_class=&#8221;matt-photo-2&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; transform_rotate=&#8221;0deg|0deg|357deg&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_center&#8221; custom_css_main_element=&#8221;z-index:5;||display:flex;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/Matt-Photo-14.jpg&#8221; alt=&#8221;Matt in college&#8221; title_text=&#8221;Matt-Photo-14&#8243; align=&#8221;center&#8221; admin_label=&#8221;Image&#8221; module_class=&#8221;matt-photo-1&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; transform_rotate=&#8221;0deg|0deg|3deg&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_center&#8221; custom_css_main_element=&#8221;z-index:6;||display:flex;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/Matt-Photo-13.jpg&#8221; alt=&#8221;Matt &#8211; Junior Year &#8211; New Year, same shirt, better haircut&#8221; title_text=&#8221;Matt-Photo-13&#8243; align=&#8221;center&#8221; admin_label=&#8221;Image&#8221; module_class=&#8221;matt-photo-1&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; transform_rotate=&#8221;0deg|0deg|357deg&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_center&#8221; custom_css_main_element=&#8221;z-index:7;||display:flex;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_image src=&#8221;https:\/\/bnfaimprd.wpenginepowered.com\/wp-content\/uploads\/2024\/05\/Matt-Photo-12.jpg&#8221; alt=&#8221;Matt &#8211; Sophomore Year High School&#8221; title_text=&#8221;Matt-Photo-12&#8243; align=&#8221;center&#8221; admin_label=&#8221;Image&#8221; module_class=&#8221;matt-photo-1&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; transform_rotate=&#8221;0deg|0deg|3deg&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_center&#8221; custom_css_main_element=&#8221;z-index:8;||display:flex;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Making it a Good Life&#8221; module_class=&#8221;slideshow-teen-photos&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; min_height_tablet=&#8221;&#8221; min_height_phone=&#8221;&#8221; min_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;Row&#8221; module_id=&#8221;jump-good-life&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f2f2&#8243; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;100%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; custom_padding=&#8221;50px|75px|||false|false&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; admin_label=&#8221;Column&#8221; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;none&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_line_height=&#8221;1.9em&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_padding=&#8221;30px|20px|30px|20px|true|true&#8221; custom_css_main_element=&#8221;z-index:999999&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\">MAKING IT A GOOD LIFE<\/h2>\n<p><span style=\"font-weight: 400;\">College. The milestone loomed large, but with a different kind of challenge attached.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The day his mom dropped him off was a sad but important day. It marked a new beginning. Matt arrived at the U<span>niversity of Louisiana at Lafayette<\/span>\u00a0not on his feet, but in a power wheelchair. The <span>challenge to make his life a good one, even with FA,<\/span> was far from over, but Matt was determined.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">He was surprised. It wasn&#8217;t as bad as he thought it would be. He didn&#8217;t have to worry constantly about his next step or struggle to keep up. He didn&#8217;t fall behind anymore, and he didn&#8217;t have to desperately look for something to hold onto for support. In the wheelchair, he was finally able to make eye contact during conversations with his friends. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">He could focus on talking to them instead of spending all his energy just moving around and being aware of his surroundings.<\/span><\/p>\n<blockquote>\n<p><span style=\"font-weight: 400;\">&#8220;But FA kept getting worse, like a wave that wouldn&#8217;t stop.&#8221;<\/span><\/p>\n<\/blockquote>\n<p><span style=\"font-weight: 400;\">Maybe it was this new freedom, maybe it was finally accepting his situation, but college ended up being some of the best years of Matt&#8217;s life. He was independent again and made friends all over campus. <\/span><span style=\"font-weight: 400;\">He met people in religious groups who believed in the same things he did, the smartest people in the honors program, people who cared about helping others, and even his roommates.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">But FA kept getting worse, like a wave that wouldn&#8217;t stop.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The wheelchair became his constant companion, not just for going long distances, but for everyday life. In his junior year, he had to make another hard choice: to get a shower chair. It was tough because it meant he wasn&#8217;t as independent anymore. But Matt was always practical. He saw the shower chair as another tool, just like his wheelchair.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Four years passed quickly. <span>His academic strengths centered on writing and literature, yet h<\/span>is dream of teaching English evolved into something bigger. He wanted to help people with challenges like FA find ways to be successful and happy. With this new goal in mind, he decided to apply for graduate school at Louisiana State University (LSU). He got accepted!<\/span><\/p>\n<p><span>At 23 years old, Matt commenced his master\u2019s program, treasuring the counseling knowledge and skills he developed. 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alt=&#8221;The Wheelchair Journey Begins&#8221; title_text=&#8221;wheelchair-label-trans&#8221; admin_label=&#8221;Label &#8211; Wheelchair&#8221; module_id=&#8221;wheelchair-label-wrap&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_right&#8221; vertical_offset=&#8221;-70px&#8221; horizontal_offset=&#8221;50px&#8221; max_width=&#8221;50%&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f2f2&#8243; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;100%&#8221; width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_code admin_label=&#8221;Code&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;600px&#8221; width_tablet=&#8221;500px&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"matt-audio-widget\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-header\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-img\"><img decoding=\"async\" src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-lafleur-audio-bg1.jpg\" alt=\"Matt Lafleur\"\/><\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-txt\">HEAR FROM MATT: MAKING IT A GOOD LIFE<\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-quote\">&#8220;FA isn&#8217;t a death sentence like I thought it was.&#8221;<\/div>\n<p><!-- [et_pb_line_break_holder] --> <iframe loading=\"lazy\" src=\"https:\/\/cdn.jwplayer.com\/players\/WQJgSph6-fJgmSfSB.html\" width=\"320\" height=\"40\" frameborder=\"0\" scrolling=\"auto\" title=\"Matt-Immersive-Making-it-a-Good-Life-Audio\" allowfullscreen><\/iframe><!-- [et_pb_line_break_holder] --><\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; 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You have selected the correct answer.\",\"quick_result_wrong_answer_text\":\"Wrong! You have selected a wrong answer.\",\"quiz_processing_message\":\"\",\"quiz_limit_choice\":\"Limit of choice is reached.\",\"not_allow_after_expired_time\":0,\"scheduled_time_end\":false,\"prevent_reload\":0,\"limit_email_based_submission\":0,\"total_user_tries\":0,\"is_logged_in\":false,\"pagination\":{\"amount\":1,\"section_comments\":\"\",\"total_questions\":3,\"previous_text\":\"Previous\",\"next_text\":\"Next\",\"start_quiz_survey_text\":\"Start Quiz\",\"submit_quiz_text\":\"Submit\"},\"error_messages\":{\"email_error_text\":\"Not a valid e-mail address!\",\"number_error_text\":\"This field must be a number!\",\"incorrect_error_text\":\"The entered text is not correct!\",\"empty_error_text\":\"Please complete all required fields!\",\"url_error_text\":\"The entered URL is not valid!\",\"minlength_error_text\":\"Required atleast %minlength% characters.\",\"maxlength_error_text\":\"Maximum %maxlength% characters allowed.\",\"recaptcha_error_text\":\"ReCaptcha is missing\"},\"question_list\":{\"1\":{\"question_id\":\"1\",\"quiz_id\":\"4\",\"question_name\":\"\",\"answer_array\":\"a:4:{i:0;a:3:{i:0;s:11:\\\"1 in 20,000\\\";i:1;d:0;i:2;i:0;}i:1;a:3:{i:0;s:11:\\\"1 in 30,000\\\";i:1;d:0;i:2;i:0;}i:2;a:3:{i:0;s:11:\\\"1 in 40,000\\\";i:1;d:0;i:2;i:0;}i:3;a:3:{i:0;s:11:\\\"1 in 50,000\\\";i:1;d:0;i:2;i:1;}}\",\"answer_one\":\"\",\"answer_one_points\":\"0\",\"answer_two\":\"\",\"answer_two_points\":\"0\",\"answer_three\":\"\",\"answer_three_points\":\"0\",\"answer_four\":\"\",\"answer_four_points\":\"0\",\"answer_five\":\"\",\"answer_five_points\":\"0\",\"answer_six\":\"\",\"answer_six_points\":\"0\",\"correct_answer\":\"0\",\"question_answer_info\":\"<p>FA affects roughly 1 in 50,000 people in the U.S., with a global prevalence of 1 in 40,000. In the Acadian (Cajun) population, FA is far more prevalent and studies have estimated that it may affect roughly 1 in 20,000 people. About 1 in 70 members of the Acadian population is a carrier.<\\\/p>\",\"comments\":\"1\",\"hints\":\"\",\"question_order\":\"1\",\"question_type\":\"0\",\"question_type_new\":\"0\",\"question_settings\":\"a:16:{s:8:\\\"required\\\";i:1;s:12:\\\"answerEditor\\\";s:4:\\\"text\\\";s:14:\\\"question_title\\\";s:50:\\\"What is the prevalence of FA in the United States?\\\";s:14:\\\"featureImageID\\\";s:0:\\\"\\\";s:15:\\\"featureImageSrc\\\";s:0:\\\"\\\";s:11:\\\"matchAnswer\\\";s:6:\\\"random\\\";s:14:\\\"case_sensitive\\\";s:0:\\\"\\\";s:14:\\\"answer_columns\\\";s:1:\\\"2\\\";s:16:\\\"image_size-width\\\";s:0:\\\"\\\";s:17:\\\"image_size-height\\\";s:0:\\\"\\\";s:8:\\\"autofill\\\";s:0:\\\"\\\";s:10:\\\"limit_text\\\";s:1:\\\"0\\\";s:23:\\\"limit_multiple_response\\\";s:1:\\\"0\\\";s:17:\\\"file_upload_limit\\\";s:1:\\\"4\\\";s:16:\\\"file_upload_type\\\";s:21:\\\"image,application\\\/pdf\\\";s:15:\\\"min_text_length\\\";s:0:\\\"\\\";}\",\"category\":\"\",\"linked_question\":\"\",\"deleted\":\"0\",\"deleted_question_bank\":\"0\",\"answers\":[[\"1 in 20,000\",0,0],[\"1 in 30,000\",0,0],[\"1 in 40,000\",0,0],[\"1 in 50,000\",0,1]]},\"2\":{\"question_id\":\"2\",\"quiz_id\":\"4\",\"question_name\":\"\",\"answer_array\":\"a:4:{i:0;a:3:{i:0;s:15:\\\"Genetic testing\\\";i:1;d:0;i:2;i:1;}i:1;a:3:{i:0;s:31:\\\"Nerve conduction velocity (NCV)\\\";i:1;d:0;i:2;i:0;}i:2;a:3:{i:0;s:11:\\\"Blood tests\\\";i:1;d:0;i:2;i:0;}i:3;a:3:{i:0;s:17:\\\"None of the above\\\";i:1;d:0;i:2;i:0;}}\",\"answer_one\":\"\",\"answer_one_points\":\"0\",\"answer_two\":\"\",\"answer_two_points\":\"0\",\"answer_three\":\"\",\"answer_three_points\":\"0\",\"answer_four\":\"\",\"answer_four_points\":\"0\",\"answer_five\":\"\",\"answer_five_points\":\"0\",\"answer_six\":\"\",\"answer_six_points\":\"0\",\"correct_answer\":\"0\",\"question_answer_info\":\"Genetic testing for FA involves analyzing the <em>FXN<\\\/em> gene for excessive GAA repeats in both copies of the gene. The test can be performed using a small blood or saliva sample. Prior to the gene discovery in 1996, FA was often diagnosed using nerve conduction velocity (NCV), a test that measures how quickly electrical signals move through a nerve. Matt was diagnosed using NCV.\",\"comments\":\"1\",\"hints\":\"\",\"question_order\":\"1\",\"question_type\":\"0\",\"question_type_new\":\"0\",\"question_settings\":\"a:16:{s:8:\\\"required\\\";i:1;s:12:\\\"answerEditor\\\";s:4:\\\"text\\\";s:14:\\\"question_title\\\";s:33:\\\"How is an FA diagnosis confirmed?\\\";s:14:\\\"featureImageID\\\";s:0:\\\"\\\";s:15:\\\"featureImageSrc\\\";s:0:\\\"\\\";s:11:\\\"matchAnswer\\\";s:6:\\\"random\\\";s:14:\\\"case_sensitive\\\";s:0:\\\"\\\";s:14:\\\"answer_columns\\\";s:1:\\\"2\\\";s:16:\\\"image_size-width\\\";s:0:\\\"\\\";s:17:\\\"image_size-height\\\";s:0:\\\"\\\";s:8:\\\"autofill\\\";s:0:\\\"\\\";s:10:\\\"limit_text\\\";s:1:\\\"0\\\";s:23:\\\"limit_multiple_response\\\";s:1:\\\"0\\\";s:17:\\\"file_upload_limit\\\";s:1:\\\"4\\\";s:16:\\\"file_upload_type\\\";s:21:\\\"image,application\\\/pdf\\\";s:15:\\\"min_text_length\\\";s:0:\\\"\\\";}\",\"category\":\"\",\"linked_question\":\"\",\"deleted\":\"0\",\"deleted_question_bank\":\"0\",\"answers\":[[\"Genetic testing\",0,1],[\"Nerve conduction velocity (NCV)\",0,0],[\"Blood tests\",0,0],[\"None of the above\",0,0]]},\"3\":{\"question_id\":\"3\",\"quiz_id\":\"4\",\"question_name\":\"\",\"answer_array\":\"a:4:{i:0;a:3:{i:0;s:24:\\\"Younger than 5 years old\\\";i:1;d:0;i:2;i:0;}i:1;a:3:{i:0;s:14:\\\"5-15 years old\\\";i:1;d:0;i:2;i:1;}i:2;a:3:{i:0;s:15:\\\"16-25 years old\\\";i:1;d:0;i:2;i:0;}i:3;a:3:{i:0;s:15:\\\"26-35 years old\\\";i:1;d:0;i:2;i:0;}}\",\"answer_one\":\"\",\"answer_one_points\":\"0\",\"answer_two\":\"\",\"answer_two_points\":\"0\",\"answer_three\":\"\",\"answer_three_points\":\"0\",\"answer_four\":\"\",\"answer_four_points\":\"0\",\"answer_five\":\"\",\"answer_five_points\":\"0\",\"answer_six\":\"\",\"answer_six_points\":\"0\",\"correct_answer\":\"0\",\"question_answer_info\":\"Symptoms typically begin between the ages of 5 and 15. Symptoms of FA may include lack of coordination, stumbling, falling, slurred speech, muscle weakness, skeletal deformities, and heart issues.<br \\\/><br \\\/>Source: https:\\\/\\\/www.ninds.nih.gov\\\/\",\"comments\":\"1\",\"hints\":\"\",\"question_order\":\"1\",\"question_type\":\"0\",\"question_type_new\":\"0\",\"question_settings\":\"a:16:{s:8:\\\"required\\\";i:1;s:12:\\\"answerEditor\\\";s:4:\\\"text\\\";s:14:\\\"question_title\\\";s:53:\\\"What is the typical age for the onset of FA symptoms?\\\";s:14:\\\"featureImageID\\\";s:0:\\\"\\\";s:15:\\\"featureImageSrc\\\";s:0:\\\"\\\";s:11:\\\"matchAnswer\\\";s:6:\\\"random\\\";s:14:\\\"case_sensitive\\\";s:0:\\\"\\\";s:14:\\\"answer_columns\\\";s:1:\\\"2\\\";s:16:\\\"image_size-width\\\";s:0:\\\"\\\";s:17:\\\"image_size-height\\\";s:0:\\\"\\\";s:8:\\\"autofill\\\";s:0:\\\"\\\";s:10:\\\"limit_text\\\";s:1:\\\"0\\\";s:23:\\\"limit_multiple_response\\\";s:1:\\\"0\\\";s:17:\\\"file_upload_limit\\\";s:1:\\\"4\\\";s:16:\\\"file_upload_type\\\";s:21:\\\"image,application\\\/pdf\\\";s:15:\\\"min_text_length\\\";s:0:\\\"\\\";}\",\"category\":\"\",\"linked_question\":\"\",\"deleted\":\"0\",\"deleted_question_bank\":\"0\",\"answers\":[[\"Younger than 5 years old\",0,0],[\"5-15 years old\",0,1],[\"16-25 years old\",0,0],[\"26-35 years old\",0,0]]}},\"first_page\":false}\n                    <\/script><style type='text\/css' id='qmn_quiz_template-css'>.quick-question-res-p {\r\n  background-color: #FFFFFF;\r\n}\r\n.qsm-quiz-container.quiz_theme_qsm-theme-sigma .quiz_section .mlw_qmn_new_question {\r\n    font-weight: 600 !important;\r\n    font-size: 1.2em;\r\n}\r\n.qsm-quiz-container.quiz_theme_qsm-theme-sigma {\r\nborder: 0 !important;\r\n}<\/style><div class='qsm-quiz-container qsm-quiz-container-4 qmn_quiz_container mlw_qmn_quiz qsm_auto_pagination_enabled quiz_theme_qsm-theme-sigma  '>\n\t\t\t\t\t<form name=\"quizForm4\" id=\"quizForm4\" action=\"\/experience\/wp-json\/wp\/v2\/pages\/2162\/\" method=\"POST\" class=\"qsm-quiz-form qmn_quiz_form mlw_quiz_form\" novalidate enctype=\"multipart\/form-data\">\n\t\t\t\t<input type=\"hidden\" name=\"qsm_hidden_questions\" id=\"qsm_hidden_questions\" value=\"\">\n\t\t\t\t<input type=\"hidden\" name=\"qsm_nonce\" id=\"qsm_nonce_4\" value=\"d51c212d3a\">\n\t\t\t\t<input type=\"hidden\" name=\"qsm_unique_key\" id=\"qsm_unique_key_4\" value=\"69e865de3f4ac\">\n\t\t\t\t<div id=\"mlw_error_message\" class=\"qsm-error-message qmn_error_message_section\"><\/div>\n\t\t\t\t<span id=\"mlw_top_of_quiz\"><\/span>\n\t\t\t\t\t\t\t\t\t<div class=\"qsm-auto-page-row qsm-question-page qsm-apc-1\" data-apid=\"1\" data-qpid=\"1\" style=\"display: none;\">\n\t\t\t\t\t\t\t\t<div class=\"quiz_section qsm-question-wrapper question-type-0  question-section-id-1 slide0 \">\n\t\t\t\t\t\t<div class='mlw_qmn_new_question'>What is the prevalence of FA in the United States? <\/div>\n\t\t\t<div class='mlw_qmn_question  qsm_remove_bold' >\n\t\t<p><\/p>\n\t<\/div>\n\t\t<fieldset>\n\t\t<legend><\/legend>\n\t<div class='qmn_radio_answers  qsm-grid-layout qsm-sigma-column-2'>\n\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question1-1 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question1\" id=\"question1_1\" value=\"0\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question1_1\">\n\t\t\t\t\t1 in 20,000\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question1-2 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question1\" id=\"question1_2\" value=\"1\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question1_2\">\n\t\t\t\t\t1 in 30,000\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question1-3 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question1\" id=\"question1_3\" value=\"2\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question1_3\">\n\t\t\t\t\t1 in 40,000\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question1-4 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question1\" id=\"question1_4\" value=\"3\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question1_4\">\n\t\t\t\t\t1 in 50,000\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t \t\t\t<label style=\"display: none !important;\" for=\"question1_none\">None<\/label>\n\t\t\t<input type=\"radio\" style=\"display: none;\" name=\"question1\" id=\"question1_none\" checked=\"checked\" value=\"\" \/>\n\t\t\t\t<\/div>\n\t<\/fieldset>\n\t<input type=\"hidden\" name=\"answer_limit_keys_1\" value=\"\" \/>\n\t\t\t\t<\/div><!-- .quiz_section -->\n\t\t\t\t\t\t\t\t<\/div><!-- .qsm-auto-page-row -->\n\t\t\t\t\t\t\t\t\t\t<div class=\"qsm-auto-page-row qsm-question-page qsm-apc-2\" data-apid=\"2\" data-qpid=\"2\" style=\"display: none;\">\n\t\t\t\t\t\t\t\t<div class=\"quiz_section qsm-question-wrapper question-type-0  question-section-id-2 slide1 \">\n\t\t\t\t\t\t<div class='mlw_qmn_new_question'>How is an FA diagnosis confirmed? <\/div>\n\t\t\t<div class='mlw_qmn_question  qsm_remove_bold' >\n\t\t<p><\/p>\n\t<\/div>\n\t\t<fieldset>\n\t\t<legend><\/legend>\n\t<div class='qmn_radio_answers  qsm-grid-layout qsm-sigma-column-2'>\n\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question2-1 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question2\" id=\"question2_1\" value=\"0\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question2_1\">\n\t\t\t\t\tGenetic testing\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question2-2 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question2\" id=\"question2_2\" value=\"1\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question2_2\">\n\t\t\t\t\tNerve conduction velocity (NCV)\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question2-3 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question2\" id=\"question2_3\" value=\"2\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question2_3\">\n\t\t\t\t\tBlood tests\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question2-4 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question2\" id=\"question2_4\" value=\"3\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question2_4\">\n\t\t\t\t\tNone of the above\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t \t\t\t<label style=\"display: none !important;\" for=\"question2_none\">None<\/label>\n\t\t\t<input type=\"radio\" style=\"display: none;\" name=\"question2\" id=\"question2_none\" checked=\"checked\" value=\"\" \/>\n\t\t\t\t<\/div>\n\t<\/fieldset>\n\t<input type=\"hidden\" name=\"answer_limit_keys_2\" value=\"\" \/>\n\t\t\t\t<\/div><!-- .quiz_section -->\n\t\t\t\t\t\t\t\t<\/div><!-- .qsm-auto-page-row -->\n\t\t\t\t\t\t\t\t\t\t<div class=\"qsm-auto-page-row qsm-question-page qsm-apc-3\" data-apid=\"3\" data-qpid=\"3\" style=\"display: none;\">\n\t\t\t\t\t\t\t\t<div class=\"quiz_section qsm-question-wrapper question-type-0  question-section-id-3 slide2 \">\n\t\t\t\t\t\t<div class='mlw_qmn_new_question'>What is the typical age for the onset of FA symptoms? <\/div>\n\t\t\t<div class='mlw_qmn_question  qsm_remove_bold' >\n\t\t<p><\/p>\n\t<\/div>\n\t\t<fieldset>\n\t\t<legend><\/legend>\n\t<div class='qmn_radio_answers  qsm-grid-layout qsm-sigma-column-2'>\n\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question3-1 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question3\" id=\"question3_1\" value=\"0\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question3_1\">\n\t\t\t\t\tYounger than 5 years old\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question3-2 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question3\" id=\"question3_2\" value=\"1\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question3_2\">\n\t\t\t\t\t5-15 years old\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question3-3 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question3\" id=\"question3_3\" value=\"2\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question3_3\">\n\t\t\t\t\t16-25 years old\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question3-4 \">\n\t\t\t\t\t\t\t\t\t\t\t<input 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src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/plugins\/quiz-master-next\/assets\/clock.png\" alt=\"clock.png\"\/><p class=\"qsm-time-up-text\"> Time's up<\/p><\/div><footer class=\"qsm-popup__footer\"><button class=\"qsm-popup-secondary-button qmn_btn\" data-micromodal-close=\"\" aria-label=\"Close this dialog window\" onclick=\"location.reload();\">Cancel<\/button><\/footer><\/div><\/div><\/div>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"rsrc-lp-ad-3\"><\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Matt Gym&#8221; module_id=&#8221;matt-gym&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_video_mp4=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/04\/matt-gym-30fps-sm.mp4&#8243; min_height=&#8221;700px&#8221; min_height_last_edited=&#8221;off|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text disabled_on=&#8221;on|on|off&#8221; module_id=&#8221;matt-gym-desc&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; background_color=&#8221;#0e1737&#8243; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;center_right&#8221; vertical_offset=&#8221;-50px&#8221; vertical_offset_tablet=&#8221;-50px&#8221; vertical_offset_phone=&#8221;&#8221; vertical_offset_last_edited=&#8221;on|tablet&#8221; position_origin_a_tablet=&#8221;center_right&#8221; position_origin_a_phone=&#8221;center_right&#8221; position_origin_a_last_edited=&#8221;on|desktop&#8221; position_origin_f_tablet=&#8221;&#8221; position_origin_f_phone=&#8221;&#8221; position_origin_f_last_edited=&#8221;on|phone&#8221; position_origin_r_tablet=&#8221;&#8221; position_origin_r_phone=&#8221;&#8221; position_origin_r_last_edited=&#8221;on|phone&#8221; width_tablet=&#8221;&#8221; width_phone=&#8221;&#8221; width_last_edited=&#8221;on|phone&#8221; max_width=&#8221;500px&#8221; max_width_tablet=&#8221;400px&#8221; max_width_phone=&#8221;320px&#8221; max_width_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;30px|30px|30px|30px|true|true&#8221; positioning_tablet=&#8221;absolute&#8221; positioning_phone=&#8221;absolute&#8221; positioning_last_edited=&#8221;on|phone&#8221; custom_css_main_element=&#8221;top: 250px;&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Matt reignited his passion for physical activity and, as a result, goes to physical therapy at an adaptive gym twice a week. As part of Friedreich&#8217;s ataxia treatment, physical therapy may prolong motor function capacity (including the ability to walk) and help achieve a higher quality of life for as long as possible.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; disabled_on=&#8221;off|off|on&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;off|tablet&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ffffff&#8221; width=&#8221;90%&#8221; custom_margin=&#8221;-60px||||false|false&#8221; custom_padding=&#8221;|20px||20px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Matt reignited his passion for physical activity and, as a result, goes to physical therapy at an adaptive gym twice a week. As part of Friedreich&#8217;s ataxia treatment, physical therapy may prolong motor function capacity (including the ability to walk) and help achieve a higher quality of life for as long as possible.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row module_id=&#8221;jump-missing-piece&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f2f2&#8243; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;100%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_line_height=&#8221;1.9em&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_padding=&#8221;30px|20px|30px|20px|true|true&#8221; custom_css_main_element=&#8221;z-index:999999&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\">FINDING THE MISSING PIECE<\/h2>\n<p><span style=\"font-weight: 400;\">Following his graduation, Matt\u2019s job search for a counseling position proved difficult. Despite efforts in Baton Rouge, he found no opportunities and returned to Opelousas with hopes of finding a job close to home. Rejection continued. He relocated to Lafayette, moving in with a friend while continuing his search.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">After three years and numerous interviews, he eventually moved back home in 2013, feeling defeated and ready to surrender. He believed his worsening disability and FA were the reason he wasn\u2019t hired. He felt victimized by his condition. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">His counseling dreams were on hold. And he opted to help his family with their Cajun food business.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">He moved back in with his mom. She updated an old house on their property so he could use his wheelchair easily. But FA kept taking away his independence. It was getting harder and harder for him to do things on his own. He hired someone to help him around the house, and his mom was also there for him.<\/span><\/p>\n<div id=\"attachment_3470\" style=\"width: 748px\" class=\"wp-caption alignnone\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-3470\" src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-photo-family-spread.jpg\" width=\"800\" height=\"745\" alt=\"Photos of Matt with his mom and sisters, Morgan and Mckenzie\" class=\"wp-image-3470 size-full\" style=\"display: block; margin-left: auto; margin-right: auto;\" srcset=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-photo-family-spread.jpg 800w, https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-photo-family-spread-480x447.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 800px, 100vw\" \/><p id=\"caption-attachment-3470\" class=\"wp-caption-text\">(Clockwise) Matt with sisters Morgan (l) and Mckenzie (r) (circa 2012). Matt and his mom in Turks and Caicos in 2018. Matt and Morgan at rideATAXIA 2022.<\/p><\/div>\n<p><span style=\"font-weight: 400;\">Around 2017, Matt realized something. He was comfortable, but his life didn&#8217;t feel real. How could he help others with FA if his only connection to the FA community was his sister?<\/span><\/p>\n<p><span style=\"font-weight: 400;\">That year, he looked online and found out about a bike ride for FA happening in Dallas, Texas. He contacted the person in charge, Kyle Bryant.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Matt learned that Kyle worked for a nonprofit called FARA, which stands for <span>Friedreich\u2019s Ataxia Research Alliance<\/span>. FARA raises money for FA research with the goal of slowing, stopping, reversing, and <span>eventually <\/span>curing the disease. RideATAXIA is one of their biggest fundraisers, with bike rides held in several U.S. cities each year. Kyle himself had FA and started the rides.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Matt connected with Kyle&#8217;s story. Here was someone with FA who was successful, an advocate for the disease who still loved adventure. They started emailing in 2017 and became good friends. Kyle introduced Matt to other people with FA and got him interested in riding a special kind of tricycle.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">FA used to make Matt feel isolated, but now it connected him to a community. He didn&#8217;t feel alone anymore.<\/span><\/p>\n<p><span>Inspired by Kyle\u2019s contagious passion and creativity, Matt volunteered part time for FARA as a patient ambassador. Matt\u2019s passion for counseling and mental health was finally being put to use mentoring new FA patients and their families.<\/span><\/p>\n<p><span>Driven by his volunteer work with FARA, Matt applied for a contractor position as a columnist with Bionews for its website <em>Friedreich\u2019s Ataxia News<\/em>. He hoped to use his writing and counseling skills to help and inspire the FA community. Matt began his new role in 2018 and never looked back.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Through his column \u201cLittle Victories,\u201d Matt strives to advocate for not only FA but also the other 50-plus rare and chronic conditions covered by Bionews. He eventually joined Bionews full time in 2019 and now serves as the director of business development and patient advocacy.<\/span><\/p>\n<p class=\"story-continues\">STORY CONTINUES BELOW<\/p>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;600px&#8221; width_tablet=&#8221;500px&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;|auto||auto|false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"matt-audio-widget\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-header\"><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-img\"><img decoding=\"async\" src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/07\/matt-lafleur-audio-bg1.jpg\" alt=\"Matt Lafleur\"\/><\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-txt\">HEAR FROM MATT: FINDING THE MISSING PIECE<\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/div>\n<p><!-- [et_pb_line_break_holder] -->  <\/p>\n<div class=\"matt-audio-quote\">&#8220;I realized that my goal, what I strove to do, was to help others.&#8221;<\/div>\n<p><!-- [et_pb_line_break_holder] --> <iframe loading=\"lazy\" src=\"https:\/\/cdn.jwplayer.com\/players\/I74y3Zrv-fJgmSfSB.html\" width=\"320\" height=\"40\" frameborder=\"0\" scrolling=\"auto\" title=\"Matt-Immersive-Finding-the-Missing-Piece\" allowfullscreen><\/iframe><!-- [et_pb_line_break_holder] --><\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Matt Trike Video&#8221; module_class=&#8221;matt-trike-bg-video&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_position=&#8221;top_center&#8221; background_video_mp4=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/04\/matt-trike-v1-60fps-sm1.mp4&#8243; allow_player_pause=&#8221;on&#8221; min_height=&#8221;700px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; background_color=&#8221;#0e1737&#8243; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;center_right&#8221; max_width=&#8221;500px&#8221; custom_padding=&#8221;30px|30px|30px|30px|true|true&#8221; custom_css_main_element=&#8221;top: 250px;&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>One of the activities Matt loves to do is ride his trike with his retired service dog, Zeego, in the lot behind his family&#8217;s business.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; disabled_on=&#8221;off|off|on&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row disabled_on=&#8221;off|off|on&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ffffff&#8221; width=&#8221;90%&#8221; custom_margin=&#8221;-60px||||false|false&#8221; custom_padding=&#8221;|20px||20px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>One of the activities Matt loves to do is ride his trike with his retired service dog, Zeego, in the lot behind his family&#8217;s business.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;jump-new-hope&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/08\/horizon3-scaled.jpg&#8221; background_position=&#8221;bottom_center&#8221; min_height=&#8221;660px&#8221; min_height_tablet=&#8221;660px&#8221; min_height_phone=&#8221;1400px&#8221; min_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;945px&#8221; width_tablet=&#8221;55%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; 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translateX(-10vw) scale(0.5);||  }||  10% {||    transform: translateY(0vh) translateX(10vw) scale(0.4);||  }||  20% {||    transform: translateY(-4vh) translateX(30vw) scale(0.6);||  }||  30% {||    transform: translateY(1vh) translateX(50vw) scale(0.45);||  }||  40% {||    transform: translateY(-2.5vh) translateX(70vw) scale(0.5);||  }||  50% {||    transform: translateY(0vh) translateX(90vw) scale(0.45);||  }||  51% {||    transform: translateY(0vh) translateX(110vw) scale(0.45);||  }||  100% {||    transform: translateY(0vh) translateX(110vw) scale(0.45);||  }||}&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"container\"><!-- [et_pb_line_break_holder] -->\t<!-- [et_pb_line_break_holder] -->\t<\/p>\n<div class=\"bird-container bird-container--one\"><!-- [et_pb_line_break_holder] -->\t\t<\/p>\n<div class=\"bird bird--one\"><\/div>\n<p><!-- [et_pb_line_break_holder] -->\t<\/div>\n<p><!-- [et_pb_line_break_holder] -->\t<!-- [et_pb_line_break_holder] -->\t<\/p>\n<div class=\"bird-container bird-container--two\"><!-- [et_pb_line_break_holder] -->\t\t<\/p>\n<div class=\"bird bird--two\"><\/div>\n<p><!-- [et_pb_line_break_holder] -->\t<\/div>\n<p><!-- [et_pb_line_break_holder] -->\t<!-- [et_pb_line_break_holder] -->\t<\/p>\n<div class=\"bird-container bird-container--three\"><!-- [et_pb_line_break_holder] -->\t\t<\/p>\n<div class=\"bird bird--three\"><\/div>\n<p><!-- [et_pb_line_break_holder] -->\t<\/div>\n<p><!-- [et_pb_line_break_holder] -->\t<!-- [et_pb_line_break_holder] -->\t<\/p>\n<div class=\"bird-container bird-container--four\"><!-- [et_pb_line_break_holder] -->\t\t<\/p>\n<div class=\"bird bird--four\"><\/div>\n<p><!-- [et_pb_line_break_holder] -->\t<\/div>\n<p><!-- [et_pb_line_break_holder] -->\t<!-- [et_pb_line_break_holder] --><\/div>\n<p><!-- [et_pb_line_break_holder] -->[\/et_pb_code][et_pb_text module_id=&#8221;trk-new-hope_treatment&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#0a0a0a&#8221; custom_padding=&#8221;||50px||false|false&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\"><span style=\"color: #000000;\">A NEW HOPE: TREATING THE UNTREATABLE<\/span><\/h2>\n<p>February 28, 2023: a date etched in Matt&#8217;s memory, the day his world shifted. The FDA approved Skyclarys (omaveloxolone), the first targeted treatment for Friedreich&#8217;s ataxia. A disease once deemed &#8220;untreatable&#8221; now had a glimmer of hope on the horizon.<\/p>\n<p><span style=\"font-weight: 400;\">Sure, Skyclarys wasn&#8217;t a cure. It was only approved for U.S. patients over the age of 16. But for Matt and countless others living with FA, this was a game-changer. He began taking it daily, a tangible symbol of the progress made.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">This wasn&#8217;t just a personal victory for Matt. It marked a new chapter in the FA community&#8217;s relentless fight. The fight for wider access to Skyclarys, the fight for a true cure <span>\u2014 <\/span>these battles burned brighter now, fueled by a newfound optimism. Hope, a precious commodity, had been rekindled.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Matt, the once isolated teenager grappling with his diagnosis, now stood tall as a promise of hope for others. His journey, a testament to resilience and the power of community, continues to inspire. The future, once uncertain, now held the promise of a better tomorrow, not just for Matt, but for everyone battling FA. To learn more about Skyclarys and emerging experimental treatments, visit the Friedreich&#8217;s Ataxia News <a href=\"https:\/\/friedreichsataxianews.com\/friedreichs-ataxia-treatment\/\" target=\"_blank\" rel=\"noopener\" style=\"text-decoration: underline; color: #000000; text-decoration-style: dotted;\">treatment page<\/a>.<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;BTF-adid&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_code _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"rsrc-lp-ad-4\"><\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;jump-leave-message&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_image=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/05\/grey-text-bg.jpg&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; text_text_color=&#8221;#3C3935&#8243; text_font_size=&#8221;15px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\"><span style=\"color: #000000;\">LEAVE SOME <span>LOVE<\/span>, AND A NOTE, FOR MATT<\/span><\/h2>\n<p><span>This is an opportunity for you to share any words or thoughts with Matt and for all to see. Please note: Comments will be held for moderation and we will email you once it is posted to the page. Please input your name as you would like it to be publicly displayed on the note.<\/span>[\/et_pb_text][et_pb_contact_form email=&#8221;ryan@bionews.com&#8221; custom_message=&#8221;Matt&#8217;s Note||et_pb_line_break_holder||||et_pb_line_break_holder||Name to be displayed: %%Name%%||et_pb_line_break_holder||||et_pb_line_break_holder||Message for Matt: %%Message%%||et_pb_line_break_holder||||et_pb_line_break_holder||Email: %%Email%%&#8221; success_message=&#8221;Thanks for sharing the love! We will email when your note has been posted.&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; _unique_id=&#8221;8ddf8545-d6eb-499f-8f08-a1f9d1e66a5b&#8221; title_font=&#8221;Poppins||||||||&#8221; title_text_color=&#8221;#3C3935&#8243; captcha_font=&#8221;Poppins||||||||&#8221; captcha_text_color=&#8221;#3C3935&#8243; custom_button=&#8221;on&#8221; button_text_color=&#8221;#3C3935&#8243; button_bg_color=&#8221;RGBA(255,255,255,0)&#8221; button_border_color=&#8221;#3C3935&#8243; button_icon=&#8221;&#x6a;||divi||400&#8243; button_icon_placement=&#8221;left&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_contact_field field_id=&#8221;Name&#8221; field_title=&#8221;Name&#8221; _builder_version=&#8221;4.25.1&#8243; global_colors_info=&#8221;{}&#8221; button_text_size__hover_enabled=&#8221;off&#8221; button_one_text_size__hover_enabled=&#8221;off&#8221; button_two_text_size__hover_enabled=&#8221;off&#8221; button_text_color__hover_enabled=&#8221;off&#8221; 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button_one_letter_spacing__hover_enabled=&#8221;off&#8221; button_two_letter_spacing__hover_enabled=&#8221;off&#8221; button_bg_color__hover_enabled=&#8221;off&#8221; button_one_bg_color__hover_enabled=&#8221;off&#8221; button_two_bg_color__hover_enabled=&#8221;off&#8221;][\/et_pb_contact_field][et_pb_contact_field field_id=&#8221;Message&#8221; field_title=&#8221;Message&#8221; field_type=&#8221;text&#8221; fullwidth_field=&#8221;on&#8221; _builder_version=&#8221;4.25.1&#8243; global_colors_info=&#8221;{}&#8221; button_text_size__hover_enabled=&#8221;off&#8221; button_one_text_size__hover_enabled=&#8221;off&#8221; button_two_text_size__hover_enabled=&#8221;off&#8221; button_text_color__hover_enabled=&#8221;off&#8221; button_one_text_color__hover_enabled=&#8221;off&#8221; button_two_text_color__hover_enabled=&#8221;off&#8221; button_border_width__hover_enabled=&#8221;off&#8221; button_one_border_width__hover_enabled=&#8221;off&#8221; button_two_border_width__hover_enabled=&#8221;off&#8221; button_border_color__hover_enabled=&#8221;off&#8221; button_one_border_color__hover_enabled=&#8221;off&#8221; button_two_border_color__hover_enabled=&#8221;off&#8221; button_border_radius__hover_enabled=&#8221;off&#8221; button_one_border_radius__hover_enabled=&#8221;off&#8221; button_two_border_radius__hover_enabled=&#8221;off&#8221; button_letter_spacing__hover_enabled=&#8221;off&#8221; button_one_letter_spacing__hover_enabled=&#8221;off&#8221; button_two_letter_spacing__hover_enabled=&#8221;off&#8221; button_bg_color__hover_enabled=&#8221;off&#8221; button_one_bg_color__hover_enabled=&#8221;off&#8221; button_two_bg_color__hover_enabled=&#8221;off&#8221;][\/et_pb_contact_field][\/et_pb_contact_form][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.25.1&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Gochi Hand||||||||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"slick-carousel-wrapper\"><div class=\"slick-carousel\"><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">March 25, 2025<\/div><div class=\"carousel-content\"><span class=\"relative -mx-px my-[-0.2rem] rounded px-px py-[0.2rem]\">Matt, as a member of the Skyclarys team, your story deeply moved me and fuels my dedication to advancing treatments for Friedreich's ataxia.<\/span> <span class=\"relative -mx-px my-[-0.2rem] rounded px-px py-[0.2rem]\">Remember, as Psalm 139:14 says, you are \"fearfully and wonderfully made.\"<\/span>\u200b<\/div><div class=\"carousel-byline\">M<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">March 22, 2025<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">Matt, your story really inspired me not to lose hope. Thank you for sharing.<\/span><\/div><div class=\"carousel-byline\">Danny Sims<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">March 22, 2025<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">Thank you, Matt! As a medical student, stories like these show the human side of the conditions we learn and remind me why I want to be a physician.<\/span><\/div><div class=\"carousel-byline\">Nile<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">February 18, 2025<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">Hey Matt, your beautifully written story inspires me and many others. Praying for your continued health and happiness.<\/span><\/div><div class=\"carousel-byline\">Mia Fontenot<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">February 17, 2025<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">Hi Matt, My son Sloan, a soccer player, was diagnosed at 16 and confirmed at Mayo Clinic in 2021. We live in Tuscaloosa, and he recently started Skyclarys\u2014we\u2019d love for him to connect with you!<\/span><\/div><div class=\"carousel-byline\">Amy Wombwell<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">January 23, 2025<\/div><div class=\"carousel-content\">Thank you for sharing your journey; as a fellow FA patient, I deeply resonate with your openness about emotional struggles and faith. Together, we can overcome this!<\/div><div class=\"carousel-byline\">Page<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">January 23, 2025<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">Matt became \"the cool teacher\" after all. *Much respect*<\/span><\/div><div class=\"carousel-byline\">Jim Downing<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">January 14, 2025<\/div><div class=\"carousel-content\">Matt, what an inspiring story! I'm currently working with neurologists to figure out strange symptoms, but I'm so glad you never gave up and found a treatment\u2014keep it up!<\/div><div class=\"carousel-byline\">Kristi<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">January 13, 2025<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">I am so moved by your determination! You are a great example to those fighting the fight! Keep looking forward; good things are happening!<\/span><\/div><div class=\"carousel-byline\">Marjorie<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">January 8, 2025<\/div><div class=\"carousel-content\">Matt, thank you for your article. Your ability to write so beautifully is truly a gift\u2014it touched both my heart and soul. God bless you.<\/div><div class=\"carousel-byline\">Joanne<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">January 8, 2025<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">Hi Matt, Thinking of you and your sister. I'm dealing with Sarcoidosis, fibromyalgia, and spinal injuries, but you're in my prayers. <\/span><\/div><div class=\"carousel-byline\">Karen<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 20, 2024<\/div><div class=\"carousel-content\">You\u2019re a true inspiration and total badass! Wishing you many more years of good health\u2014thanks for sharing your journey!<\/div><div class=\"carousel-byline\">Janette Acevedo<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 20, 2024<\/div><div class=\"carousel-content\">What an inspiring story of resilience and faith! God\u2019s plans came through, and it\u2019s wonderful you have a job that fits your skills and advocacy dreams!<\/div><div class=\"carousel-byline\">Karen B<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 20, 2024<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">Your story is so inspirational, thank you. As we both know, God's \"mistakes\" are often just challenges for us! Your journey proves that.<\/span><\/div><div class=\"carousel-byline\">stephanie jones<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 20, 2024<\/div><div class=\"carousel-content\">You\u2019re amazing, and I\u2019m so proud of you! I have scleroderma, so I know life\u2019s challenges\u2014keep smiling, and you look so handsome!<\/div><div class=\"carousel-byline\">Linda<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 10, 2024<\/div><div class=\"carousel-content\">Thank you for sharing your inspiring story! As someone living with Myasthenia Gravis, I\u2019m encouraged by advancements like Vyvgart that bring hope.<\/div><div class=\"carousel-byline\">Barb Eisele<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 10, 2024<\/div><div class=\"carousel-content\">Matt, your story is truly inspiring. Thank you for sharing and giving hope to others, including those like me facing challenges with Sjogren\u2019s. -Jo<\/div><div class=\"carousel-byline\">Joanie Schirm<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 10, 2024<\/div><div class=\"carousel-content\">Matt, God has blessed you as His chosen messenger to inspire courage, determination, and hope in others. His blessings be with you always!<\/div><div class=\"carousel-byline\">Rose Goggins<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 10, 2024<\/div><div class=\"carousel-content\">Wonderful story of faith, family and a determined spirit to succeed. Thank you for sharing.<\/div><div class=\"carousel-byline\">Catherine R<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 3, 2024<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">Matt, your story inspires hope and resilience. May you feel God's presence guiding you forward, every step of the way<\/span><\/div><div class=\"carousel-byline\">Charlene W Dixon<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 3, 2024<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">Thank you Matt for your story of hope.<\/span><\/div><div class=\"carousel-byline\">Donna<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 3, 2024<\/div><div class=\"carousel-content\">Matt, thank you for sharing your journey, which I deeply relate to as I navigate my own battle with Ehlers-Danlos Syndrome and mast cell disorder. Your story gives me strength and inspiration to keep fighting.<\/div><div class=\"carousel-byline\">Joy<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">December 3, 2024<\/div><div class=\"carousel-content\">Matt, your story is incredibly inspiring! As I navigate my own battle with Ehlers-Danlos Syndrome, I draw strength from your resilient spirit and unwavering faith. Thank you for sharing your journey.<\/div><div class=\"carousel-byline\">Claire Veale<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">November 27, 2024<\/div><div class=\"carousel-content\"><span data-sheets-root=\"1\">My uncle had this back in 1955. I was shocked to read this story. He was in a wheelchair and had to be taken care of 24\/7<\/span><\/div><div class=\"carousel-byline\">Stephanie Corrao<\/div><\/div><\/div><div class=\"carousel-item\"><div class=\"carousel-sticky-note\"><div class=\"carousel-date\">November 27, 2024<\/div><div class=\"carousel-content\">Matt, thank you for sharing your story - it was serendipitous and helped me gain perspective on my own health struggles. I wish you many amazing and wonderful days ahead!<\/div><div class=\"carousel-byline\">Melissa Cox<\/div><\/div><\/div><\/div><button class=\"slick-prev\" aria-label=\"Previous\" type=\"button\">Previous<\/button><button class=\"slick-next\" aria-label=\"Next\" type=\"button\">Next<\/button><\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;jump-thank-you&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/06\/matt-wall-thankyou.jpg&#8221; background_position=&#8221;top_center&#8221; custom_css_main_element=&#8221;min-height: 800px;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#F2F3F3&#8243; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;center_right&#8221; 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_module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\">Check out Matt&#8217;s column &#8220;<em>Little Victories<\/em>&#8221; on <a href=\"https:\/\/friedreichsataxianews.com\/little-victories-matthew-lafleur\/\" target=\"_blank\" rel=\"noopener\"><em>Friedreich\u2019s Ataxia News<\/em><\/a> to follow him on his journey.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; disabled_on=&#8221;off|off|on&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#0e1737&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row disabled_on=&#8221;off|off|on&#8221; module_id=&#8221;thank-you-inset-mobile&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ffffff&#8221; width=&#8221;90%&#8221; custom_margin=&#8221;-60px||||false|false&#8221; custom_padding=&#8221;|20px||20px|false|false&#8221; 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_module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\">Check out Matt&#8217;s column &#8220;<em>Little Victories<\/em>&#8221; on <a href=\"https:\/\/friedreichsataxianews.com\/little-victories-matthew-lafleur\/\" target=\"_blank\" rel=\"noopener\"><em>Friedreich\u2019s Ataxia News<\/em><\/a> to follow him on his journey.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;jump-survey-feedback&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;945px&#8221; width_tablet=&#8221;700px&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; 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value=\"69e865de49752\">\n\t\t\t\t<div id=\"mlw_error_message\" class=\"qsm-error-message qmn_error_message_section\"><\/div>\n\t\t\t\t<span id=\"mlw_top_of_quiz\"><\/span>\n\t\t\t\t\t\t\t\t\t<div class=\"qsm-auto-page-row qsm-question-page qsm-apc-1\" data-apid=\"1\" data-qpid=\"1\" style=\"display: none;\">\n\t\t\t\t\t\t\t\t<div class=\"quiz_section qsm-question-wrapper question-type-0  question-section-id-11 slide0 \">\n\t\t\t\t\t\t<div class='mlw_qmn_new_question'>How would you rate your overall experience with the story? <\/div>\n\t\t\t<div class='mlw_qmn_question  qsm_remove_bold' >\n\t\t<p><\/p>\n\t<\/div>\n\t\t<fieldset>\n\t\t<legend><\/legend>\n\t<div class='qmn_radio_answers  qsm-grid-layout qsm-sigma-column-2'>\n\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question11-1 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question11\" id=\"question11_1\" value=\"0\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question11_1\">\n\t\t\t\t\tExcellent\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question11-2 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question11\" id=\"question11_2\" value=\"1\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question11_2\">\n\t\t\t\t\tGood\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question11-3 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question11\" id=\"question11_3\" value=\"2\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question11_3\">\n\t\t\t\t\tAverage\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question11-4 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question11\" id=\"question11_4\" value=\"3\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question11_4\">\n\t\t\t\t\tPoor\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t \t\t\t<label style=\"display: none !important;\" for=\"question11_none\">None<\/label>\n\t\t\t<input type=\"radio\" style=\"display: none;\" name=\"question11\" id=\"question11_none\" checked=\"checked\" value=\"\" \/>\n\t\t\t\t<\/div>\n\t<\/fieldset>\n\t<input type=\"hidden\" name=\"answer_limit_keys_11\" value=\"\" \/>\n\t\t\t\t<\/div><!-- .quiz_section -->\n\t\t\t\t\t\t\t\t<\/div><!-- .qsm-auto-page-row -->\n\t\t\t\t\t\t\t\t\t\t<div class=\"qsm-auto-page-row qsm-question-page qsm-apc-2\" data-apid=\"2\" data-qpid=\"2\" style=\"display: none;\">\n\t\t\t\t\t\t\t\t<div class=\"quiz_section qsm-question-wrapper question-type-0  question-section-id-12 slide1 \">\n\t\t\t\t\t\t<div class='mlw_qmn_new_question'>Did this program improve your understanding of FA and the challenges and impact of living with a rare disease <\/div>\n\t\t\t<div class='mlw_qmn_question  qsm_remove_bold' >\n\t\t<p><\/p>\n\t<\/div>\n\t\t<fieldset>\n\t\t<legend><\/legend>\n\t<div class='qmn_radio_answers mlwRequiredRadio qsm-grid-layout qsm-sigma-column-2'>\n\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question12-1 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question12\" id=\"question12_1\" value=\"0\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question12_1\">\n\t\t\t\t\tMuch more informed\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question12-2 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question12\" id=\"question12_2\" value=\"1\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question12_2\">\n\t\t\t\t\tSlightly more informed\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question12-3 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question12\" id=\"question12_3\" value=\"2\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question12_3\">\n\t\t\t\t\tNo change\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t \t\t\t<label style=\"display: none !important;\" for=\"question12_none\">None<\/label>\n\t\t\t<input type=\"radio\" style=\"display: none;\" name=\"question12\" id=\"question12_none\" checked=\"checked\" value=\"\" \/>\n\t\t\t\t<\/div>\n\t<\/fieldset>\n\t<input type=\"hidden\" name=\"answer_limit_keys_12\" value=\"\" \/>\n\t\t\t\t<\/div><!-- .quiz_section -->\n\t\t\t\t\t\t\t\t<\/div><!-- .qsm-auto-page-row -->\n\t\t\t\t\t\t\t\t\t\t<div class=\"qsm-auto-page-row qsm-question-page qsm-apc-3\" data-apid=\"3\" data-qpid=\"3\" style=\"display: none;\">\n\t\t\t\t\t\t\t\t<div class=\"quiz_section qsm-question-wrapper question-type-0  question-section-id-13 slide2 \">\n\t\t\t\t\t\t<div class='mlw_qmn_new_question'>How likely are you to share this story with others? <\/div>\n\t\t\t<div class='mlw_qmn_question  qsm_remove_bold' >\n\t\t<p><\/p>\n\t<\/div>\n\t\t<fieldset>\n\t\t<legend><\/legend>\n\t<div class='qmn_radio_answers mlwRequiredRadio qsm-grid-layout qsm-sigma-column-2'>\n\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question13-1 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question13\" id=\"question13_1\" value=\"0\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question13_1\">\n\t\t\t\t\tVery likely\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question13-2 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question13\" id=\"question13_2\" value=\"1\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question13_2\">\n\t\t\t\t\tLikely\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question13-3 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question13\" id=\"question13_3\" value=\"2\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question13_3\">\n\t\t\t\t\tUnlikley\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t \t\t\t<label style=\"display: none !important;\" for=\"question13_none\">None<\/label>\n\t\t\t<input type=\"radio\" style=\"display: none;\" name=\"question13\" id=\"question13_none\" checked=\"checked\" value=\"\" \/>\n\t\t\t\t<\/div>\n\t<\/fieldset>\n\t<input type=\"hidden\" name=\"answer_limit_keys_13\" value=\"\" \/>\n\t\t\t\t<\/div><!-- .quiz_section -->\n\t\t\t\t\t\t\t\t<\/div><!-- .qsm-auto-page-row -->\n\t\t\t\t\t\t\t\t\t\t<div class=\"qsm-auto-page-row qsm-question-page qsm-apc-4\" data-apid=\"4\" data-qpid=\"4\" style=\"display: none;\">\n\t\t\t\t\t\t\t\t<div class=\"quiz_section qsm-question-wrapper question-type-5  question-section-id-14 slide3 \">\n\t\t\t\t\t\t<div class='mlw_qmn_new_question'><label class=\"qsm-question-title-label\" for=\"question14\">Do you have any thoughts or comments you would like to share about your experience with this program? <\/label><\/div>\n\t\t\t<div class='mlw_qmn_question  qsm_remove_bold' >\n\t\t<p><\/p>\n\t<\/div>\n\t\t<textarea class=\"mlw_answer_open_text \" cols=\"70\" rows=\"5\" id=\"question14\" name=\"question14\"   placeholder=\"\" \/><\/textarea>\n\t\t\t\t<\/div><!-- .quiz_section -->\n\t\t\t\t\t\t\t\t<\/div><!-- .qsm-auto-page-row -->\n\t\t\t\t\t\t\t\t\t\t<div class=\"qsm-auto-page-row qsm-question-page qsm-apc-5\" data-apid=\"5\" data-qpid=\"5\" style=\"display: none;\">\n\t\t\t\t\t\t\t\t<div class=\"quiz_section qsm-question-wrapper question-type-0  question-section-id-16 slide4 \">\n\t\t\t\t\t\t<div class='mlw_qmn_new_question'>Which best describes you? <\/div>\n\t\t\t<div class='mlw_qmn_question  qsm_remove_bold' >\n\t\t<p><\/p>\n\t<\/div>\n\t\t<fieldset>\n\t\t<legend><\/legend>\n\t<div class='qmn_radio_answers  qsm-grid-layout qsm-sigma-column-2'>\n\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question16-1 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question16\" id=\"question16_1\" value=\"0\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question16_1\">\n\t\t\t\t\tI am a person with Friedreich's ataxia\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question16-2 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question16\" id=\"question16_2\" value=\"1\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question16_2\">\n\t\t\t\t\tI am a caregiver\/family member of a person with Friedreich's ataxa\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"qmn_mc_answer_wrap  mrq_checkbox_class\" id=\"question16-3 \">\n\t\t\t\t\t\t\t\t\t\t\t<input type='radio' class='qmn_quiz_radio qmn-multiple-choice-input ' name=\"question16\" id=\"question16_3\" value=\"2\" \/>\n\t\t\t\t\t<label class=\"qsm-input-label\" for=\"question16_3\">\n\t\t\t\t\tOther\t\t\t\t\t<\/label>\n\t\t\t\t\t \t\t\t\t<\/div>\n\t\t\t\t\t \t\t\t<label style=\"display: none !important;\" for=\"question16_none\">None<\/label>\n\t\t\t<input type=\"radio\" style=\"display: none;\" name=\"question16\" id=\"question16_none\" checked=\"checked\" value=\"\" \/>\n\t\t\t\t<\/div>\n\t<\/fieldset>\n\t<input type=\"hidden\" name=\"answer_limit_keys_16\" value=\"\" \/>\n\t\t\t\t<\/div><!-- .quiz_section -->\n\t\t\t\t\t\t\t\t<\/div><!-- .qsm-auto-page-row -->\n\t\t\t\t\t\t\t<input type=\"hidden\" name=\"qmn_question_list\" value=\"11Q12Q13Q14Q16Q\" \/>\n\t\t\t\t\t<br \/>\n\t\t\t<div class=\"qsm-auto-page-row quiz_section quiz_end qsm-d-none\">\n\t\t\t\t\t\t\t\t\t<div class=\"qsm_contact_div qsm-contact-type-email\">\n\t\t\t\t\t\t\t\t\t\t\t<span class='mlw_qmn_question qsm_question'><label for=\"contact_field_1\">Email me when you publish new patient experiences! (Optional)<\/label><\/span>\n\t\t\t\t\t\t\t\t<input type='email' class='mlwEmail '  name='contact_field_1' id='contact_field_1'  autocomplete='off'  placeholder='Your email (optional)'  \/>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<div id=\"mlw_error_message_bottom\" class=\"qsm-error-message qmn_error_message_section\"><\/div>\n\t\t\t\t\t<input type=\"hidden\" name=\"qmn_all_questions_count\" id=\"qmn_all_questions_count\" value=\"5\" \/>\n\t\t\t\t\t<input type=\"hidden\" name=\"total_questions\" id=\"total_questions\" value=\"5\" \/>\n\t\t\t\t\t<input type=\"hidden\" name=\"timer\" id=\"timer\" value=\"0\" \/>\n\t\t\t\t\t<input type=\"hidden\" name=\"timer_ms\" id=\"timer_ms\" value=\"0\"\/>\n\t\t\t\t\t<input type=\"hidden\" class=\"qmn_quiz_id\" name=\"qmn_quiz_id\" id=\"qmn_quiz_id\" value=\"7\" \/>\n\t\t\t\t\t<input type='hidden' name='complete_quiz' value='confirmation' \/>\n\t\t\t\t\t\t\t\t\t<\/form>\n\t\t<\/div>\n\t\t<div style=\"display: none;\" class=\"qsm-popup qsm-popup-slide\" id=\"modal-4\" aria-hidden=\"false\"><div class=\"qsm-popup__overlay\" tabindex=\"-1\" data-micromodal-close=\"\"><div class=\"qsm-popup__container qmn_quiz_container\" role=\"dialog\" aria-modal=\"true\"><div class=\"qsm-popup__content\"><img decoding=\"async\" src=\"https:\/\/friedreichsataxianews.com\/experience\/wp-content\/plugins\/quiz-master-next\/assets\/clock.png\" alt=\"clock.png\"\/><p class=\"qsm-time-up-text\"> Time's up<\/p><\/div><footer class=\"qsm-popup__footer\"><button class=\"qsm-popup-secondary-button qmn_btn\" data-micromodal-close=\"\" aria-label=\"Close this dialog window\" onclick=\"location.reload();\">Cancel<\/button><\/footer><\/div><\/div><\/div>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;jump-additional-resources&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#e9e9e9&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;&#8221; width_phone=&#8221;&#8221; width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Poppins||||||||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"font-family: Bebas Neue;\"><span style=\"color: #000000;\">ADDITIONAL RESOURCES<\/span><\/h2>\n<p><span>Check out our other resources on <em>Friedreich&#8217;s Ataxia News <\/em>to help you navigate your FA journey.<\/span>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_4,1_4,1_4,1_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;10px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/08\/FA-Promo-Columnist-V3-600&#215;600-1.png&#8221; alt=&#8221;Hear from our columnists.&#8221; title_text=&#8221;FA Promo-Columnist-V3-600&#215;600&#8243; url=&#8221;https:\/\/friedreichsataxianews.com\/category\/columns\/&#8221; url_new_window=&#8221;on&#8221; module_id=&#8221;trk-additional-resources_columns&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; max_width_tablet=&#8221;&#8221; max_width_phone=&#8221;175px&#8221; max_width_last_edited=&#8221;on|phone&#8221; module_alignment=&#8221;center&#8221; hover_enabled=&#8221;0&#8243; module_alignment_phone=&#8221;center&#8221; module_alignment_last_edited=&#8221;off|phone&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/08\/FA-Promo-Com-Coversation-V3-600&#215;600-1.png&#8221; alt=&#8221;Join the FA community converstation&#8221; title_text=&#8221;FA Promo-Com Coversation-V3-600&#215;600&#8243; url=&#8221;https:\/\/friedreichsataxianews.com\/forums\/&#8221; url_new_window=&#8221;on&#8221; module_id=&#8221;trk-additional-resources_forums&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; max_width_tablet=&#8221;&#8221; max_width_phone=&#8221;175px&#8221; max_width_last_edited=&#8221;on|phone&#8221; module_alignment=&#8221;center&#8221; hover_enabled=&#8221;0&#8243; module_alignment_phone=&#8221;center&#8221; module_alignment_last_edited=&#8221;off|phone&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/friedreichsataxianews.com\/experience\/wp-content\/uploads\/2024\/08\/FA-Promo-Education-Hub-V3-600&#215;600-1.png&#8221; alt=&#8221;Explore the FA education hub.&#8221; title_text=&#8221;FA Promo-Education Hub-V3-600&#215;600&#8243; url=&#8221;https:\/\/friedreichsataxianews.com\/friedreichs-ataxia-education-empowering-yourself\/&#8221; url_new_window=&#8221;on&#8221; module_id=&#8221;trk-additional-resource_hub&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; max_width_tablet=&#8221;&#8221; max_width_phone=&#8221;175px&#8221; max_width_last_edited=&#8221;on|phone&#8221; 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It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Diagnosed at 9 years old, Matt Lafleur &#038; family faced the devastating reality of Friedreich&#8217;s ataxia. 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