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X-WR-CALNAME:Friedreich's Ataxia News
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DTSTART;TZID=America/Chicago:20250327T080000
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CREATED:20241025T145739Z
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SUMMARY:Annual Ataxia Conference
DESCRIPTION:AAC is the largest Ataxia gathering in the world! At this annual event\, attendees meet and learn from world-leading Ataxia researchers and clinicians\, network\, and reunite with old friends. Hundreds of people – from patients\, to caregivers\, to medical professionals – travel from all over the world to attend the conference. Attendees get the opportunity to learn about Ataxia subjects such as: research\, genetics\, physical therapy\, living with Ataxia\, coping\, financial planning\, caregiving\, and more.
URL:https://friedreichsataxianews.com/event/annual-ataxia-conference/
LOCATION:Planet Hollywood\, 3667 Las Vegas Blvd S\, Las Vegas\, NV\, United States
CATEGORIES:NAF
ATTACH;FMTTYPE=image/png:https://friedreichsataxianews.com/wp-content/uploads/2024/10/Conference-Image-169.png
ORGANIZER;CN="National Ataxia Foundation":MAILTO:stephanie@ataxia.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250607T093000
DTEND;TZID=America/Chicago:20250607T140000
DTSTAMP:20260510T122757
CREATED:20250509T211443Z
LAST-MODIFIED:20250509T211443Z
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SUMMARY:FA Research Reception - Oklahoma City\, OK
DESCRIPTION:FA Research Receptions provide individuals living with FA and their families with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.
URL:https://friedreichsataxianews.com/event/fa-research-reception-oklahoma-city-ok/
LOCATION:Vast\, 333 W Sheridan Ave\, 49th Floor\, Oklahoma City\, OK\, 73102\, United States
CATEGORIES:FARA
ATTACH;FMTTYPE=image/webp:https://friedreichsataxianews.com/wp-content/uploads/2025/05/events_Education-OKC-and-temp-for-Symposium-image.webp
ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250607T180000
DTEND;TZID=America/Chicago:20250607T210000
DTSTAMP:20260510T122757
CREATED:20250509T211437Z
LAST-MODIFIED:20250509T211437Z
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SUMMARY:Cure FA Soirée
DESCRIPTION:This year’s Cure FA Soirée will be Saturday evening\, June 7\, at the Omni Hotel in Oklahoma City\, and feature performances by talented musicians along with dinner for hundreds of guests from across the country. Earlier that day\, FA families\, researchers\, and pharmaceutical companies will gather to discuss the latest research and potential treatments.
URL:https://friedreichsataxianews.com/event/cure-fa-soiree/
LOCATION:Omni Hotel OKC\, 100 Oklahoma City Blvd\, Oklahoma City\, OK\, 73109\, United States
CATEGORIES:FARA
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ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250720T073000
DTEND;TZID=America/Chicago:20250720T130000
DTSTAMP:20260510T122757
CREATED:20250509T211426Z
LAST-MODIFIED:20250509T211426Z
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SUMMARY:rideATAXIA Chicago
DESCRIPTION:Get ready for an amazing day at Channahon Central Park! 🚴‍♂️ Whether you’re up for a 27\, 12 or a 4-mile ride or a 1-mile walk/ride within the park\, there’s something for everyone. After your ride\, join us for a celebration of your incredible fundraising efforts to help find treatments and cures for FA.
URL:https://friedreichsataxianews.com/event/rideataxia-chicago/
LOCATION:Channahon Central Park\, 24856 W Eames Street\, Channahon\, IL\, 60410\, United States
CATEGORIES:FARA
ATTACH;FMTTYPE=image/webp:https://friedreichsataxianews.com/wp-content/uploads/2025/05/events_rideATAXIAChicago.webp
ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251012T070000
DTEND;TZID=America/Chicago:20251012T130000
DTSTAMP:20260510T122757
CREATED:20250509T211418Z
LAST-MODIFIED:20250509T211418Z
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SUMMARY:rideATAXIA Philly
DESCRIPTION:Join us at Montgomery County Community College for a 4-\, 8-\, 26-\, or 46-mile ride\, or a 1.4-mile walk/ride on campus\, plus an awesome celebration of your fundraising efforts to help find treatments and cures for FA.
URL:https://friedreichsataxianews.com/event/rideataxia-philly/
LOCATION:Montgomery County Community College\, 340 DeKalb Pike\, Blue Bell\, PA\, 19422\, United States
CATEGORIES:FARA
ATTACH;FMTTYPE=image/webp:https://friedreichsataxianews.com/wp-content/uploads/2025/05/events_rideATAXIAPhilly.webp
ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251013T073000
DTEND;TZID=America/Chicago:20251013T160000
DTSTAMP:20260510T122757
CREATED:20250509T211410Z
LAST-MODIFIED:20250509T211410Z
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SUMMARY:FA Symposium
DESCRIPTION:FARA and the Friedreich’s Ataxia Center of Excellence at Children’s Hospital of Philadelphia (CHOP) proudly host the 2025 Friedreich’s Ataxia Symposium a day of education and community.
URL:https://friedreichsataxianews.com/event/fa-symposium/
LOCATION:Crowne Plaza\, 260 Mall Boulevard\, King of Prussia\, PA\, 19406\, United States
CATEGORIES:FARA
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ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260409T080000
DTEND;TZID=America/Chicago:20260411T180000
DTSTAMP:20260510T122757
CREATED:20251215T224145Z
LAST-MODIFIED:20260120T201323Z
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SUMMARY:Annual Ataxia Conference 2026
DESCRIPTION:AAC is the largest Ataxia gathering in the world! At this annual event\, attendees meet and learn from world-leading Ataxia researchers and clinicians\, network\, and reunite with old friends. Hundreds of people – from patients\, to caregivers\, to medical professionals – travel from all over the world to attend the conference. Attendees get the opportunity to learn about Ataxia subjects such as: research\, genetics\, physical therapy\, living with Ataxia\, coping\, financial planning\, caregiving\, and more.
URL:https://friedreichsataxianews.com/event/annual-ataxia-conference-2026/
LOCATION:Rosen Center Hotel\, 9840 International Drive\, Orlando\, FL\, 32819\, United States
CATEGORIES:NAF
ATTACH;FMTTYPE=image/png:https://friedreichsataxianews.com/wp-content/uploads/2025/12/2026-AAC-Logo-e1768597114417.png
ORGANIZER;CN="National Ataxia Foundation":MAILTO:stephanie@ataxia.org
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