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X-WR-CALNAME:Friedreich's Ataxia News
X-ORIGINAL-URL:https://friedreichsataxianews.com
X-WR-CALDESC:Events for Friedreich's Ataxia News
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260409T080000
DTEND;TZID=America/Chicago:20260411T180000
DTSTAMP:20260509T144800
CREATED:20251215T224145Z
LAST-MODIFIED:20260120T201323Z
UID:10000012-1775721600-1775930400@friedreichsataxianews.com
SUMMARY:Annual Ataxia Conference 2026
DESCRIPTION:AAC is the largest Ataxia gathering in the world! At this annual event\, attendees meet and learn from world-leading Ataxia researchers and clinicians\, network\, and reunite with old friends. Hundreds of people – from patients\, to caregivers\, to medical professionals – travel from all over the world to attend the conference. Attendees get the opportunity to learn about Ataxia subjects such as: research\, genetics\, physical therapy\, living with Ataxia\, coping\, financial planning\, caregiving\, and more.
URL:https://friedreichsataxianews.com/event/annual-ataxia-conference-2026/
LOCATION:Rosen Center Hotel\, 9840 International Drive\, Orlando\, FL\, 32819\, United States
CATEGORIES:NAF
ATTACH;FMTTYPE=image/png:https://friedreichsataxianews.com/wp-content/uploads/2025/12/2026-AAC-Logo-e1768597114417.png
ORGANIZER;CN="National Ataxia Foundation":MAILTO:stephanie@ataxia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251013T073000
DTEND;TZID=America/Chicago:20251013T160000
DTSTAMP:20260509T144800
CREATED:20250509T211410Z
LAST-MODIFIED:20250509T211410Z
UID:10000011-1760340600-1760371200@friedreichsataxianews.com
SUMMARY:FA Symposium
DESCRIPTION:FARA and the Friedreich’s Ataxia Center of Excellence at Children’s Hospital of Philadelphia (CHOP) proudly host the 2025 Friedreich’s Ataxia Symposium a day of education and community.
URL:https://friedreichsataxianews.com/event/fa-symposium/
LOCATION:Crowne Plaza\, 260 Mall Boulevard\, King of Prussia\, PA\, 19406\, United States
CATEGORIES:FARA
ATTACH;FMTTYPE=image/webp:https://friedreichsataxianews.com/wp-content/uploads/2025/05/events_Education-OKC-and-temp-for-Symposium-image-1.webp
ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251012T070000
DTEND;TZID=America/Chicago:20251012T130000
DTSTAMP:20260509T144800
CREATED:20250509T211418Z
LAST-MODIFIED:20250509T211418Z
UID:10000010-1760252400-1760274000@friedreichsataxianews.com
SUMMARY:rideATAXIA Philly
DESCRIPTION:Join us at Montgomery County Community College for a 4-\, 8-\, 26-\, or 46-mile ride\, or a 1.4-mile walk/ride on campus\, plus an awesome celebration of your fundraising efforts to help find treatments and cures for FA.
URL:https://friedreichsataxianews.com/event/rideataxia-philly/
LOCATION:Montgomery County Community College\, 340 DeKalb Pike\, Blue Bell\, PA\, 19422\, United States
CATEGORIES:FARA
ATTACH;FMTTYPE=image/webp:https://friedreichsataxianews.com/wp-content/uploads/2025/05/events_rideATAXIAPhilly.webp
ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250720T073000
DTEND;TZID=America/Chicago:20250720T130000
DTSTAMP:20260509T144801
CREATED:20250509T211426Z
LAST-MODIFIED:20250509T211426Z
UID:10000009-1752996600-1753016400@friedreichsataxianews.com
SUMMARY:rideATAXIA Chicago
DESCRIPTION:Get ready for an amazing day at Channahon Central Park! 🚴‍♂️ Whether you’re up for a 27\, 12 or a 4-mile ride or a 1-mile walk/ride within the park\, there’s something for everyone. After your ride\, join us for a celebration of your incredible fundraising efforts to help find treatments and cures for FA.
URL:https://friedreichsataxianews.com/event/rideataxia-chicago/
LOCATION:Channahon Central Park\, 24856 W Eames Street\, Channahon\, IL\, 60410\, United States
CATEGORIES:FARA
ATTACH;FMTTYPE=image/webp:https://friedreichsataxianews.com/wp-content/uploads/2025/05/events_rideATAXIAChicago.webp
ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250607T180000
DTEND;TZID=America/Chicago:20250607T210000
DTSTAMP:20260509T144801
CREATED:20250509T211437Z
LAST-MODIFIED:20250509T211437Z
UID:10000008-1749319200-1749330000@friedreichsataxianews.com
SUMMARY:Cure FA Soirée
DESCRIPTION:This year’s Cure FA Soirée will be Saturday evening\, June 7\, at the Omni Hotel in Oklahoma City\, and feature performances by talented musicians along with dinner for hundreds of guests from across the country. Earlier that day\, FA families\, researchers\, and pharmaceutical companies will gather to discuss the latest research and potential treatments.
URL:https://friedreichsataxianews.com/event/cure-fa-soiree/
LOCATION:Omni Hotel OKC\, 100 Oklahoma City Blvd\, Oklahoma City\, OK\, 73109\, United States
CATEGORIES:FARA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2025/05/CureFASoiree_2025_Front-e1746641451896.jpg
ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250607T093000
DTEND;TZID=America/Chicago:20250607T140000
DTSTAMP:20260509T144801
CREATED:20250509T211443Z
LAST-MODIFIED:20250509T211443Z
UID:10000007-1749288600-1749304800@friedreichsataxianews.com
SUMMARY:FA Research Reception - Oklahoma City\, OK
DESCRIPTION:FA Research Receptions provide individuals living with FA and their families with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.
URL:https://friedreichsataxianews.com/event/fa-research-reception-oklahoma-city-ok/
LOCATION:Vast\, 333 W Sheridan Ave\, 49th Floor\, Oklahoma City\, OK\, 73102\, United States
CATEGORIES:FARA
ATTACH;FMTTYPE=image/webp:https://friedreichsataxianews.com/wp-content/uploads/2025/05/events_Education-OKC-and-temp-for-Symposium-image.webp
ORGANIZER;CN="Friedreich's Ataxia Research Alliance":MAILTO:info@curefa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250327T080000
DTEND;TZID=America/Chicago:20250329T180000
DTSTAMP:20260509T144801
CREATED:20241025T145739Z
LAST-MODIFIED:20241025T145739Z
UID:10000005-1743062400-1743271200@friedreichsataxianews.com
SUMMARY:Annual Ataxia Conference
DESCRIPTION:AAC is the largest Ataxia gathering in the world! At this annual event\, attendees meet and learn from world-leading Ataxia researchers and clinicians\, network\, and reunite with old friends. Hundreds of people – from patients\, to caregivers\, to medical professionals – travel from all over the world to attend the conference. Attendees get the opportunity to learn about Ataxia subjects such as: research\, genetics\, physical therapy\, living with Ataxia\, coping\, financial planning\, caregiving\, and more.
URL:https://friedreichsataxianews.com/event/annual-ataxia-conference/
LOCATION:Planet Hollywood\, 3667 Las Vegas Blvd S\, Las Vegas\, NV\, United States
CATEGORIES:NAF
ATTACH;FMTTYPE=image/png:https://friedreichsataxianews.com/wp-content/uploads/2024/10/Conference-Image-169.png
ORGANIZER;CN="National Ataxia Foundation":MAILTO:stephanie@ataxia.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250316T070000
DTEND;TZID=America/Chicago:20250319T120000
DTSTAMP:20260509T144801
CREATED:20250226T201942Z
LAST-MODIFIED:20250226T201942Z
UID:10000006-1742108400-1742385600@friedreichsataxianews.com
SUMMARY:MDA: Clinical & Scientific Conference
DESCRIPTION:Join us in shaping the future of neuromuscular disease research and care at the MDA’s 2025 Clinical and Scientific Conference. The record number of participants from around the globe at our 2024 conference underscores the vital role our gathering plays in advancing the field of neuromuscular medicine and bringing ever more powerful therapies to people living with neuromuscular disease. No other conference in our space commands the attention and engagement of clinicians\, researchers\, allied health professionals\, industry\, and patient advocates quite like ours. \nOur collective efforts over many years have brought us into a prolific era for drug development. This Era of Treatments has been marked by groundbreaking discoveries and innovative therapies that bring new hope to our community. These include major advances in genetic therapies\, treatments for ultrarare conditions and parsing emerging data points that help us visualize new paths forward for ending neuromuscular disease. The value of being part of this conference is unparalleled. At the MDA Clinical and Scientific Conference\, you and your organization gain visibility and alignment with cutting-edge research and compassionate care\, and benefit from discussions about the latest scientific advancements\, collaborative opportunities\, and opportunities to shape the future of neuromuscular medicine. The momentum we are building is extraordinary. The synergy of our diverse expertise and shared dedication propels us towards unprecedented achievements and meaningful change for children and adults pursuing longer\, stronger\, more independent lives. Join us and be part of a global movement that continues to push the boundaries of what is possible. \nIf you are a patient or caregiver interested in attending the in-person conference or an MDA volunteer interested in attending virtually\, please complete this form before registering: https://web.cvent.com/event/a0e62898-47b9-4b88-88b8-aca631f6a834/register?RefId=2025+Attendee+Registration+Email&rp=84e6d5ae-6b69-4e5c-b84d-614504db238c
URL:https://friedreichsataxianews.com/event/mda-clinical-scientific-conference/
LOCATION:Hilton Anatole\, 2201 N Stemmons Freeway\, Dallas\, TX\, 75207\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2025/02/2025-Conference-Lockup-final.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241109T100000
DTEND;TZID=America/Chicago:20241109T153000
DTSTAMP:20260509T144801
CREATED:20241022T212231Z
LAST-MODIFIED:20241022T212231Z
UID:10000004-1731146400-1731166200@friedreichsataxianews.com
SUMMARY:MDA Engage Symposium: Dallas\, TX
DESCRIPTION:This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS)\, Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, myotonic dystrophy\, ultra-rare neuromuscular diseases\, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as nutrition\, exercise\, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community.
URL:https://friedreichsataxianews.com/event/mda-engage-symposium-dallas-tx/
LOCATION:Renaissance Dallas Hotel\, 2222 N Stemmons Fwy\, Dallas\, CA\, 75207\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Dallas.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241109T100000
DTEND;TZID=America/Chicago:20241109T153000
DTSTAMP:20260509T144801
CREATED:20241022T212224Z
LAST-MODIFIED:20241022T212224Z
UID:10000003-1731146400-1731166200@friedreichsataxianews.com
SUMMARY:MDA Engage Symposium: Irvine\, CA
DESCRIPTION:This Engage Symposium will offer sessions on myasthenia gravis (MG)\, Pompe disease\, spinal muscular atrophy (SMA)\, and myositis\, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as navigating insurance\, mental health\, and exercise. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Tahseen Mozaffar\, neurologist at UC Irvine chairing this Engage Symposium.
URL:https://friedreichsataxianews.com/event/mda-engage-symposium-irvine-ca/
LOCATION:The Beckman Center\, 100 Academy Way\, Irvine\, CA\, 92617\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Irvine.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241102T100000
DTEND;TZID=America/Chicago:20241102T153000
DTSTAMP:20260509T144801
CREATED:20241022T212216Z
LAST-MODIFIED:20241022T212216Z
UID:10000002-1730541600-1730561400@friedreichsataxianews.com
SUMMARY:MDA Engage Symposium: Stanford\, CA
DESCRIPTION:This Engage Symposium will provide updates on all neuromuscular diseases including Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, amyotrophic lateral sclerosis (ALS)\, spinal muscular atrophy (SMA)\, myasthenia gravis (MG)\, limb-girdle muscular dystrophy (LGMD)\, myotonic dystrophy (DM)\, Charcot-Marie-Tooth disease (CMT)\, Pompe disease\, Lambert-Eaton myasthenic syndrome (LEMS)\, Friedreich Ataxia (FA)\, facioscapulohumeral muscular dystrophy (FSHD)\, and several others. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and companies supporting the neuromuscular community. \nMDA is pleased to have Dr. John W. Day\, neurologist at Stanford University chairing this Engage Symposium.
URL:https://friedreichsataxianews.com/event/mda-engage-symposium-stanford-ca/
LOCATION:Li Ka Shing Learning and Knowledge Center- Paul & Mildred Berg Hall\, 291 Campus Drive\, Stanford\, CA\, 94305\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Stanford.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241005T100000
DTEND;TZID=America/Chicago:20241005T153000
DTSTAMP:20260509T144801
CREATED:20241022T212207Z
LAST-MODIFIED:20241022T212207Z
UID:10000001-1728122400-1728142200@friedreichsataxianews.com
SUMMARY:MDA Engage Symposium: Atlanta\, GA
DESCRIPTION:This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS)\, spinal muscular atrophy (SMA)\, Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, research and clinical trial updates for all diagnoses\, as well as sessions on daily living such as nutrition\, exercise\, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Jun Ho Kim from Children’s Hospital of Atlanta and Dr. Jonathan Glass from Emory University co-chairing this Engage Symposium.
URL:https://friedreichsataxianews.com/event/mda-engage-symposium-atlanta-ga/
LOCATION:Emory Conference Center Hotel\, 1615 Clifton Road\, Atlanta\, GA\, 30329\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Atlanta.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
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