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DTSTART;VALUE=DATE:20261107
DTEND;VALUE=DATE:20261108
DTSTAMP:20260514T220414Z
CREATED:20260514T220414Z
LAST-MODIFIED:20260514T220414Z
UID:10000019-1794009600-1794095999@friedreichsataxianews.com
SUMMARY:MDA Engage: Stanford
DESCRIPTION:MDA Engage events are in-person community education programs designed to support people living with neuromuscular disease (NMD) and their caregivers. These events provide opportunities to learn from and connect with experts in the field as well as with others living with NMD. Each event delivers valuable information\, fosters connection\, and provides space for real conversations between the community\, healthcare providers\, and industry supporters. These events are designed specifically to support people living with NMD\, their caregivers\, and advocates by: \nIncreasing disease understanding.\nProviding guidance through critical life transitions.\nSupporting access to tools and information that enhance quality of life.\nCreating opportunities for meaningful connection and community building.
URL:https://friedreichsataxianews.com/event/mda-engage-stanford/
LOCATION:Stanford\, CA\, Stanford\, CA\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/MDA-Engage-700-px.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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DTSTART;VALUE=DATE:20261107
DTEND;VALUE=DATE:20261108
DTSTAMP:20260514T223811Z
CREATED:20260514T223811Z
LAST-MODIFIED:20260514T223811Z
UID:10000029-1794009600-1794095999@friedreichsataxianews.com
SUMMARY:Muscle Walk of Dallas
DESCRIPTION:How the MDA Muscle Walk Works\nThe MDA Muscle Walk is an inspiring event that unites communities throughout the country behind the mission to empower people living with neuromuscular diseases to live life to the fullest potential. Follow the steps below to live your best Muscle Walk experience. \nRegister\nStart a team\, join a team\, or participate as an individual. Click any of these links to register: Register as a participant or create a team. After you register\, you’ll have access to your own fundraising webpage. Customize your page with photos\, share your inspiration for participating\, and set your fundraising goal.
URL:https://friedreichsataxianews.com/event/muscle-walk-of-dallas/
LOCATION:Dallas\, Texas\, Dallas\, TX\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/Muscle-Walk-700x394-1.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261113
DTEND;VALUE=DATE:20261114
DTSTAMP:20260922T220306Z
CREATED:20260922T220306Z
LAST-MODIFIED:20260922T220306Z
UID:10000030-1794528000-1794614399@friedreichsataxianews.com
SUMMARY:MDA Passport to a Cure Gala\, Scottsdale\, AZ
DESCRIPTION:Passport to a Cure is a gala benefiting the community through the Muscular Dystrophy Association\, celebrating hope\, strength\, and community. \nOrganizer Emails: kmortellaro@mdausa.org\, Ssmaw@mdausa.org
URL:https://friedreichsataxianews.com/event/mda-passport-to-a-cure-gala-scottsdale-az/
LOCATION:The Westin Kierland Resort & Spa\, 6902 E Greenway Pkwy\, Scottsdale\, AZ\, 85254\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/png:https://friedreichsataxianews.com/wp-content/uploads/2026/09/unnamed-1.png
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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DTSTART;TZID=America/Chicago:20261114T180000
DTEND;TZID=America/Chicago:20261114T233000
DTSTAMP:20260928T184327Z
CREATED:20260928T184243Z
LAST-MODIFIED:20260928T184327Z
UID:10000031-1794679200-1794699000@friedreichsataxianews.com
SUMMARY:MDA Toast to Life Gala - Orlando\, FL
DESCRIPTION:On November 14th\, 2026\, we invite you to be part of the Orlando Toast to Life Gala\, an evening dedicated to honoring lives touched by muscular dystrophy diseases and advancing the fight for a cure.  \nOrganizer email: phampton@mdausa.org
URL:https://friedreichsataxianews.com/event/mda-toast-to-life-gala-orlando-fl/
LOCATION:Country Club of Orlando\, 1601 Country Club Drive\, Orlando\, FL\, 32804\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/png:https://friedreichsataxianews.com/wp-content/uploads/2026/09/unnamed-2.png
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261120
DTEND;VALUE=DATE:20261121
DTSTAMP:20261002T173924Z
CREATED:20261002T173924Z
LAST-MODIFIED:20261002T173924Z
UID:10000033-1795132800-1795219199@friedreichsataxianews.com
SUMMARY:2026 Berks Black N Blue Ball
DESCRIPTION:The MDA Berks Black-N-Blue Ball is a high-energy evening where bold style meets a powerful mission. Hosted at Classic Harley-Davidson\, this unforgettable event brings together supporters\, community leaders\, and friends of MDA for a night of cocktails\, connection\, and impact. \nOrganizer Email: emclinn@mdausa.org
URL:https://friedreichsataxianews.com/event/2026-berks-black-n-blue-ball/
LOCATION:Classic Harley-Davidson\, 983 James Drive\, Leesport\, PA\, 19533\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/png:https://friedreichsataxianews.com/wp-content/uploads/2026/10/unnamed-6.png
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261120
DTEND;VALUE=DATE:20261123
DTSTAMP:20261002T173231Z
CREATED:20260514T223157Z
LAST-MODIFIED:20261002T173231Z
UID:10000025-1795132800-1795391999@friedreichsataxianews.com
SUMMARY:Join MDA Team Momentum - 2026 Philadelphia Marathon Weekend
DESCRIPTION:MDA Team Momentum is the Muscular Dystrophy Association’s endurance program\, uniting athletes of all levels to run\, walk\, or cycle to fight neuromuscular diseases. Participants fundraise and dedicate miles to accelerate research\, care\, and support for families. Team members receive customized training\, mentorship\, and race-weekend VIP experiences while building a strong\, inspiring community. Through dedication and shared passion\, this program transforms personal endurance milestones into\, funds\, hope\, and breakthroughs for individuals living with muscular dystrophy and related diseases. It’s a powerful way to make every mile count \nBy signing up to run the 2026 Philadelphia Marathon Weekend with MDA’s Team Momentum\, you are dedicating your miles to support those living with muscular dystrophy\, ALS\, and related neuromuscular disease to live longer\, more independent lives.   \nOrganizer email: mwaters@mdausa.org 
URL:https://friedreichsataxianews.com/event/team-momentum/
LOCATION:FL
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/Team-Momentum-700-x-394.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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