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X-WR-CALNAME:Friedreich's Ataxia News
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X-WR-CALDESC:Events for Friedreich's Ataxia News
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DTSTART;VALUE=DATE:20260607
DTEND;VALUE=DATE:20260822
DTSTAMP:20260518T004422
CREATED:20260514T222951Z
LAST-MODIFIED:20260514T222951Z
UID:10000024-1780790400-1787356799@friedreichsataxianews.com
SUMMARY:MDA Summer Camp (with volunteer opportunities)
DESCRIPTION:At MDA Summer Camp\, every camper finds a place to belong in a community rooted in inclusion\, friendship\, and fun. Here\, kids and young adults with neuromuscular disease grow in confidence as they take on new adventures\, make lifelong friends\, learn to self-advocate\, and discover just how much they can do. \nEach summer\, campers ages 8-17\, attend these life-changing\, overnight camps around the U.S. – at no cost to their families\, thanks to our generous supporters.Camp Can Change Your Life if You Let It\nMDA Summer Camp wouldn’t be possible without people like you. Each summer\, hundreds of volunteers serve as counselors and medical team members during weeklong\, overnight Summer Camp programs to help make it a safe\, fun\, and memorable experience for all participants. \nAs a volunteer\, you will support campers as they participate in adaptive camp activities\, games\, dances\, mealtimes and more. You’ll also take on the rewarding role of caregiver\, friend and confidence builder\, making an impact that lasts long after camp ends.
URL:https://friedreichsataxianews.com/event/mda-summer-camp-with-volunteer-opportunities/
LOCATION:TX
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/Summer-Camp-700-x-394.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260623
DTEND;VALUE=DATE:20260624
DTSTAMP:20260518T004422
CREATED:20260514T221559Z
LAST-MODIFIED:20260514T221559Z
UID:10000022-1782172800-1782259199@friedreichsataxianews.com
SUMMARY:6th Annual Boston Muscle Team Golf Outing
DESCRIPTION:Join us for a day of progress! Let’s unite our communities and bring awareness to neuromuscular disease. Together with MDA\, we will continue to lead the way in accelerating care\, advancing research\, and advocating for the support of families.
URL:https://friedreichsataxianews.com/event/6th-annual-boston-muscle-team-golf-outing/
LOCATION:Pinehills Golf Club\, 54 Clubhouse Drive\, Plymouth\, MA\, 02360\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/Golf-Event700x394.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260718T083000
DTEND;TZID=America/Chicago:20260718T170000
DTSTAMP:20260518T004422
CREATED:20260514T205625Z
LAST-MODIFIED:20260514T205625Z
UID:10000016-1784363400-1784394000@friedreichsataxianews.com
SUMMARY:MDA Engage – Hershey\, PA
DESCRIPTION:Join us for an energizing in person gathering designed for individuals living with neuromuscular disease and the people who support them. Our expert led sessions—guided by clinicians and specialists in the field—offer a mix of disease specific education and practical daily living insights\, ensuring there’s something meaningful for everyone. You’ll walk away with clear\, actionable insights to help guide informed decisions about your\, or your loved one’s\, care. Plus\, enjoy meaningful opportunities to connect with others in the community and explore a variety of informative exhibitor booths.
URL:https://friedreichsataxianews.com/event/mda-engage-hershey-pa/
LOCATION:Hershey Lodge – Confection Hall\, 325 University Drive\, Hershey\, PA\, 17033\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/MDA-Engage-700-px.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260917
DTEND;VALUE=DATE:20260919
DTSTAMP:20260518T004422
CREATED:20260514T221915Z
LAST-MODIFIED:20260514T221915Z
UID:10000023-1789603200-1789775999@friedreichsataxianews.com
SUMMARY:Sam Osborn Memorial Golf Tournament
DESCRIPTION:Join us for the annual Sam Osborn Memorial Golf Tournament\, where we come together on the fairways to celebrate the life of an extraordinary individual and raise funds for causes close to Sam’s heart. This two-day event combines the joy of golfing with the spirit of giving… and the chance to win some ridiculous prizes. \nEvent Day 1: Day 1: Thursday\, September 17\, 2026: Golf; Registration: 10:30 a.m. | Tee time: 11:30 a.m. \nEvent Day 2: Day 2: Friday\, September 18\, 2026: Golf + Concert; Registration: 10:30 a.m. | Tee time: 11:30 a.m. Dinner\, auction\, and concert: 6-11 p.m.
URL:https://friedreichsataxianews.com/event/sam-osborn-memorial-golf-tournament/
LOCATION:Tiburon Golf Club & Banquet facility\, 10302 SOUTH 168TH STREET\, OMAHA\, NE\, 68136\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/Golf-Event700x394.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260919
DTEND;VALUE=DATE:20260920
DTSTAMP:20260518T004422
CREATED:20260514T223745Z
LAST-MODIFIED:20260514T223745Z
UID:10000028-1789776000-1789862399@friedreichsataxianews.com
SUMMARY:Muscle Walk of Minnesota
DESCRIPTION:How the MDA Muscle Walk Works\nThe MDA Muscle Walk is an inspiring event that unites communities throughout the country behind the mission to empower people living with neuromuscular diseases to live life to the fullest potential. Follow the steps below to live your best Muscle Walk experience. \nRegister\nStart a team\, join a team\, or participate as an individual. Click any of these links to register: Register as a participant or create a team. After you register\, you’ll have access to your own fundraising webpage. Customize your page with photos\, share your inspiration for participating\, and set your fundraising goal.
URL:https://friedreichsataxianews.com/event/muscle-walk-of-minnesota/
LOCATION:Wolfe Park\, St. Louis Park\, MN\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/Muscle-Walk-700x394-1.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260925
DTEND;VALUE=DATE:20260927
DTSTAMP:20260518T004422
CREATED:20260514T220006Z
LAST-MODIFIED:20260514T220006Z
UID:10000017-1790294400-1790467199@friedreichsataxianews.com
SUMMARY:MDA Engage – Chicago
DESCRIPTION:Join us just outside of Chicago for the MDA Engage Symposium! This in person gathering is designed for individuals living with neuromuscular disease and the people who support them. Our expert led sessions—guided by clinicians and specialists in the field—offer a mix of disease specific education and practical daily living insights\, ensuring there’s something meaningful for everyone. You’ll walk away with clear\, actionable insights to help guide informed decisions about your\, or your loved one’s\, care. Plus\, enjoy meaningful opportunities to connect with others in the community and explore a variety of informative exhibitor booths. \nEvent Day 1: Friday\, September 25\nWelcome Reception: 5:00-7:00pm \nEvent Day 2: Saturday\, September 26\nRegistration and Breakfast: 8:00-9:00 a.m.\nLearning Sessions: 9:00 a.m. – 4:45 p.m.
URL:https://friedreichsataxianews.com/event/mda-engage-chicago/
LOCATION:Westin Chicago Lombard\, 70 Yorktown Shopping Center\, Lombard\, IL\, 60148\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/MDA-Engage-700-px.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261011
DTEND;VALUE=DATE:20261121
DTSTAMP:20260518T004422
CREATED:20260514T223157Z
LAST-MODIFIED:20260514T223157Z
UID:10000025-1791676800-1795219199@friedreichsataxianews.com
SUMMARY:Team Momentum
DESCRIPTION:MDA Team Momentum is the Muscular Dystrophy Association’s endurance program\, uniting athletes of all levels to run\, walk\, or cycle to fight neuromuscular diseases. Participants fundraise and dedicate miles to accelerate research\, care\, and support for families. Team members receive customized training\, mentorship\, and race-weekend VIP experiences while building a strong\, inspiring community. Through dedication and shared passion\, this program transforms personal endurance milestones into\, funds\, hope\, and breakthroughs for individuals living with muscular dystrophy and related diseases. It’s a powerful way to make every mile count \nOctober 11\, November 1\, November 20 
URL:https://friedreichsataxianews.com/event/team-momentum/
LOCATION:TX
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/Team-Momentum-700-x-394.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261023
DTEND;VALUE=DATE:20261025
DTSTAMP:20260518T004422
CREATED:20260514T220215Z
LAST-MODIFIED:20260514T220215Z
UID:10000018-1792713600-1792886399@friedreichsataxianews.com
SUMMARY:MDA Engage - Dallas
DESCRIPTION:Join us in Dallas for our MDA Engage Symposium! This in person gathering is designed for individuals living with neuromuscular disease and the people who support them. Our expert led sessions—guided by clinicians and specialists in the field—offer a mix of disease specific education and practical daily living insights\, ensuring there’s something meaningful for everyone. You’ll walk away with clear\, actionable insights to help guide informed decisions about your\, or your loved one’s\, care. Plus\, enjoy meaningful opportunities to connect with others in the community and explore a variety of informative exhibitor booths. \nEvent Day 1: Friday\, October 23\nWelcome Reception: 5:00-7:00pm \nEvent Day 2: Saturday\, October 24\nRegistration and Breakfast: 8:00-9:00 a.m.\nLearning Sessions: 9:00 a.m. – 4:45 p.m.
URL:https://friedreichsataxianews.com/event/mda-engage-dallas/
LOCATION:Renaissance Dallas Hotel\, 2222 N Stemmons Fwy\, Dallas\, CA\, 75207\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/MDA-Engage-700-px.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261107
DTEND;VALUE=DATE:20261108
DTSTAMP:20260518T004422
CREATED:20260514T220414Z
LAST-MODIFIED:20260514T220414Z
UID:10000019-1794009600-1794095999@friedreichsataxianews.com
SUMMARY:MDA Engage: Stanford
DESCRIPTION:MDA Engage events are in-person community education programs designed to support people living with neuromuscular disease (NMD) and their caregivers. These events provide opportunities to learn from and connect with experts in the field as well as with others living with NMD. Each event delivers valuable information\, fosters connection\, and provides space for real conversations between the community\, healthcare providers\, and industry supporters. These events are designed specifically to support people living with NMD\, their caregivers\, and advocates by: \nIncreasing disease understanding.\nProviding guidance through critical life transitions.\nSupporting access to tools and information that enhance quality of life.\nCreating opportunities for meaningful connection and community building.
URL:https://friedreichsataxianews.com/event/mda-engage-stanford/
LOCATION:Stanford\, CA\, Stanford\, CA\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/MDA-Engage-700-px.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261107
DTEND;VALUE=DATE:20261108
DTSTAMP:20260518T004422
CREATED:20260514T223811Z
LAST-MODIFIED:20260514T223811Z
UID:10000029-1794009600-1794095999@friedreichsataxianews.com
SUMMARY:Muscle Walk of Dallas
DESCRIPTION:How the MDA Muscle Walk Works\nThe MDA Muscle Walk is an inspiring event that unites communities throughout the country behind the mission to empower people living with neuromuscular diseases to live life to the fullest potential. Follow the steps below to live your best Muscle Walk experience. \nRegister\nStart a team\, join a team\, or participate as an individual. Click any of these links to register: Register as a participant or create a team. After you register\, you’ll have access to your own fundraising webpage. Customize your page with photos\, share your inspiration for participating\, and set your fundraising goal.
URL:https://friedreichsataxianews.com/event/muscle-walk-of-dallas/
LOCATION:Dallas\, Texas\, Dallas\, TX\, United States
CATEGORIES:MDA
ATTACH;FMTTYPE=image/jpeg:https://friedreichsataxianews.com/wp-content/uploads/2026/05/Muscle-Walk-700x394-1.jpg
ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:ballens@mdausa.org
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