Social Clips

March 8, 2018March 19, 2019

How to Handle Feeling Like a Burden While Living With FA

If you are a Friedreich’s ataxia patient, it’s likely that you’ve felt like a burden on your loved ones at one time or another. Sometimes you even feel bad ... Read more

March 1, 2018March 22, 2019

Why the Movie ‘The Ataxian’ Is So Important to the FA Community

On February 26, 2018, the movie The Ataxian was finally released to the public. If you’re not familiar with the film, it features Kyle Bryant and Sean Baumstark, two ... Read more

January 25, 2018March 26, 2019

How Physical Activity Can Help You Deal With the Progression of FA

After being diagnosed with a neuromuscular disorder with no set treatment plan and no cure, optimism and proactiveness may seem like a stretch. You may feel like there’s nothing ... Read more

January 18, 2018

Learn More About the MOXIe Clinical Study for Friedreich’s Ataxia

Later this month, Jennifer Farmer, Executive Director of FARA and Dr. Keith Ward, CDO of Reata Pharmaceuticals, will be hosting two meetings to discuss the initial results of the MOXIe ... Read more

November 30, 2017

How to Handle Feeling Like a Burden While Living With FA

If you are a Friedreich’s ataxia patient, it’s likely that you’ve felt like a burden on your loved ones at one time or another. Sometimes you even feel bad ... Read more

November 28, 2017March 26, 2019

Common Communication Issues When You Have FA

As an FA patient, it can be difficult to effectively communicate your exact needs, hesitations or fears to those whose help you need the most. It can seem nearly ... Read more

November 1, 2017May 15, 2019

Ronde Barber and Kyle Bryant Talk About Friedreich’s Ataxia

In this video, Tampa Bay Buccaneers’ football player Ronde Barber talks about his involvement with the non-profit organization, Friedreich’s Ataxia Research Alliance (FARA), and spokesperson Kyle Bryant talks about what it’s ... Read more

October 25, 2017

5 Things to Know About an Ataxia Diagnosis

If you or a loved one have been diagnosed with ataxia, it’s normal to feel overwhelmed and concerned about what the future has in store. We’ve compiled a list ... Read more

October 18, 2017May 16, 2019

7 Stress-Busting Tips for Parents of Children With Friedreich’s Ataxia

Caring for a child with a chronic illness such as Friedreich’s ataxia can be very stressful and can take its toll emotionally. The Friedreich’s Ataxia Parents’ Group suggests ways ... Read more

October 12, 2017June 3, 2019

Why rideATAXIA Is So Important to the FA Community

Every year, thousands of people from all over America set out on their bikes in support of Friedreich’s ataxia. The event, aptly called rideATAXIA, has been going on since ... Read more

September 26, 2017February 7, 2019

A Look at Life With Friedreich’s Ataxia

It’s hard for most people to understand what daily life is like for someone with Friedrich’s ataxia (FA). Thankfully, there are patients around the world who graciously allow strangers ... Read more

September 21, 2017

Explaining Friedreich’s Ataxia

Friedreich’s ataxia (FA) is a genetic and progressive neuromuscular disease that attacks the body’s nerves and muscles. Usually occurring in childhood, symptoms of FA typically appear between the ages of 5 and 18. ... Read more

September 20, 2017February 6, 2019

9 Things to Know About the Inheritance of Friedreich’s Ataxia

Friedreich’s ataxia is an inherited disease that affects movement and coordination. It’s a progressive disease with symptoms including loss of strength, weakened muscles, spasticity, impaired speech, hearing and vision problems, and in ... Read more

September 19, 2017September 25, 2017

3 Important Friedreich’s Ataxia Topics That Will Be Discussed At #IARC2017

From Sept. 27 to Sept. 30, the second International Ataxia Research Conference is taking place in Pisa, Italy. Like the inaugural conference in 2015, the meeting will bring together patients, doctors, patient ... Read more

August 30, 2017

5 Major Symptoms of Friedreich’s Ataxia

Friedreich’s ataxia (FA) is a rare genetic disorder where the body produces antibodies that limit the production of frataxin, a protein vital for nerve and muscle health. A lack of frataxin leads ... Read more

August 30, 2017

The Medical Management of Friedreich’s Ataxia

While there is no cure for Friedreich’s ataxia, there are treatments that can help patients manage symptoms and improve their quality of life. Treatment for Friedreich’s ataxia consists of medications, physical therapy, and ... Read more

August 29, 2017March 15, 2019

9 Things to Know About the Inheritance of Friedreich’s Ataxia

August 28, 2017

10 Useful Things to Know If You’re Attending #IARC2017

This year’s annual International Ataxia Research Conference (IARC) will be taking place in Pisa, Italy from September 27 to 30. MORE: Life at college with Friedreich’s ataxia Held in the ... Read more

August 21, 2017August 28, 2017

The Medical Management of Friedreich’s Ataxia

August 17, 2017January 31, 2019

5 Types of Treatment for Friedreich’s Ataxia

Friedreich’s ataxia (FA) is a genetic neuromuscular disease that can lead to motor control issues and often leads to the inability to walk, problems with the senses and swallowing, ... Read more

August 14, 2017February 4, 2019

5 Things to Know About an Ataxia Diagnosis

If you or a loved one have been diagnosed with ataxia, it’s normal to feel overwhelmed and concerned about what the future has in store. We’ve compiled a list ... Read more

August 10, 2017August 29, 2017

Ronde Barber and Kyle Bryant Talk About Friedreich’s Ataxia

August 7, 2017January 28, 2019

5 Major Symptoms of Friedreich’s Ataxia

August 7, 2017May 17, 2019

Explaining Friedreich’s Ataxia

Friedreich’s Ataxia (FA) is a genetic and progressive neuromuscular disease that attacks the body’s nerves and muscles. Usually occurring in childhood, symptoms of FA generally appear between the ages of 5 ... Read more

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