Exploring accessible outdoor spaces with Friedreich’s ataxia
Last updated Oct. 14, 2025, by Roslyn Marano
Children with Friedreich’s ataxia (FA) often begin life without obvious mobility challenges. Until FA symptoms start to appear, many are active, playful, and energetic.
As needs change, inclusive outdoor spaces play a vital role in supporting both physical and emotional health for children growing up with the condition. These areas can offer opportunities for rest, connection, and shared experiences outside clinical settings.
Why outdoor spaces matter for kids with FA
FA is a progressive condition, and symptoms may not appear until later childhood. That’s why accessibility is important from the start — and why the focus should go beyond traditional playgrounds.
While kids with FA might start off running alongside their peers, with the ability to play on swing sets and jungle gyms, they gradually develop difficulty with coordination, balance, or fatigue.
As their needs change, so do the types of spaces that are most inclusive. Open green spaces, wide walking trails, sports fields with accessible entry points, and bike paths that allow for adaptive equipment can all provide inclusive opportunities for movement, rest, and recreation.
These spaces can also serve as low-pressure environments to safely transition between mobility stages, such as using a walker or wheelchair.
Benefits of spending time outside when living with FA
Spending time in accessible outdoor areas can support several aspects of physical and mental well-being for kids and teens with FA, including:
- encouraging movement through self-paced walking, adaptive biking, or light stretching
- promoting social connection by making meetups at accessible parks easier
- supporting emotional health by reducing stress and improving mood
- fostering independence by allowing kids to explore or rest at their own pace
These benefits may be especially meaningful for children who were once very active, helping maintain a sense of identity and joy in movement.
Features to look for in accessible outdoor spaces
Whether you’re planning a visit or helping your local community improve access, here are some helpful features to look for or recommend:
- Smooth, wide paths: Wide and smooth paths make it easier for people using wheelchairs or adaptive bikes to move comfortably.
- Shaded rest areas: Covered rest areas offer a place to pause and recharge.
- Clear signage: Clear signage helps people understand a space’s layout, making them feel more confident as they navigate the area.
- Barrier-free facilities: Accessible bathrooms and water stations support comfort and independence.
- Quiet zones: Spaces for sensory breaks, rest, or a moment of calm when it’s needed most are equally important.
Tips for getting the most out of outdoor time
Living with a condition like FA means planning ahead. Here are a few tips to help your child enjoy the outdoors:
- Choose the right mobility aids: Use gear that fits the terrain, like a walker with larger wheels for gravel paths.
- Look up accessibility info ahead of time: Trail maps or park guides can help you find the best nearby options.
- Plan for cooler times of day: Mornings or evenings can help reduce fatigue and the risk of overheating.
- Bring the essentials: Pack water, sunscreen, and any medications or medical items your child may need.
- Let your child take the lead: Give them the chance to pick the path or decide when it’s time to rest.
How to advocate for more inclusive outdoor spaces
If your local parks or green spaces aren’t accessible, your voice matters. Consider these ways to advocate for more inclusive options in your area:
- Reach out to your parks department: Ask about upgrades like wider trails, inclusive playgrounds, or sensory-friendly zones.
- Connect with advocacy groups: Many local accessibility or disability coalitions are already working to improve public spaces.
- Speak up at public meetings: Share your perspective as a caregiver or as someone living with FA.
- Start with small changes: Suggest additions like an accessible picnic table or shade structure, and build momentum from there.
Accessibility benefits people with FA and the broader community, including families with strollers, older adults, and those recovering from injuries.
FA organizations may also be able to provide advocacy tools and resources. You can also explore sources like the Trust for Public Land and American Trails for inspiration and ideas.
Friedreich’s Ataxia News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
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