Ronde Barber and Kyle Bryant Talk About Friedreich’s Ataxia

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by Wendy Henderson |

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In this video, Tampa Bay Buccaneers’ football player Ronde Barber talks about his involvement with the non-profit organization, Friedreich’s Ataxia Research Alliance (FARA), and spokesperson Kyle Bryant talks about what it’s like to live with Friedreich’s ataxia (FA).

MORE: Researchers create heart cells to study FA-related heart disease

Bryant explains that Friedreich’s ataxia is a life-threatening degenerative neuromuscular disease and although his balance and upper body strength has been affected, he’s able to use a recumbent tricycle to help keep his heart healthy.

Friedreich’s ataxia is a genetic disease where the body doesn’t make enough of the protein frataxin, which has a dramatic effect on the muscles and nerves in the body, causing a range of symptoms.

The duo explains how FARA is dedicated to raising awareness and funds to support research projects studying the condition.

MORE: Researchers identify two molecules that boost frataxin levels in Friedreich’s ataxia animal models. 

Friedreich’s Ataxia News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.